Category Archives: News

WAMES ponders the NICE guideline shockwave

Posted on 08/20/2021 by wames

WAMES ponders the NICE guideline shockwave How far will it extend?   People with ME/CFS have been looking forward to the publication of the revised NICE guideline on 18th August 2021, since the review process began in early 2018. Frustratingly … Continue reading →

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Research: Diffusion tensor imaging (MRI) reveals neuronal microstructural changes in ME/CFS

Posted on 08/20/2021 by wames

Diffusion tensor imaging reveals neuronal microstructural changes in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Kiran Thapaliya, Sonya Marshall-Gradisnik, Don Staines, Leighton Barnden in European Journal of Neuroscience, August 6, 2021 [doi/10.1111/ejn.15413]   Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients suffer from … Continue reading →

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WAMES writes to NICE

Posted on 08/18/2021 by wames

WAMES writes to NICE about publication delays   The shock of yesterday’s announcement from NICE, ‘pausing’ publication of the ME/CFS guideline, was followed up this morning when there was still no announcement about what was to happen next. Are they … Continue reading →

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Research review: Redox imbalance links COVID-19 & ME/CFS

Posted on 08/18/2021 by wames

Redox imbalance links COVID-19 and myalgic encephalomyelitis/chronic fatigue syndrome, by Bindu D Paul, Marian D Lemle, Anthony L Komaroff, Solomon H Snyder in PNAS August 24,  2021 118 (34); [doi.org/10.1073/pnas.2024358118]   Review abstract: Although most patients recover from acute COVID-19, … Continue reading →

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Treatment research: The effects of non-invasive vagus nerve stimulation… in patients with CFS, FM, & rheumatoid arthritis

Posted on 08/13/2021 by wames

The effects of non-invasive vagus nerve stimulation on immunological responses and patient reported outcome measures of fatigue in patients with chronic fatigue syndrome, fibromyalgia, and rheumatoid arthritis, by E Traianos, B Dibnah, D Lendrem, Y Clark, V Macrae, V Slater, … Continue reading →

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New free Pacing app for ME/CFS from Australia

Posted on 08/13/2021 by wames

ME/CFS Pacing App from Emerge Australia   Emerge Australia would like to introduce to you the ME/CFS Pacing App created by our generous contributor, Mathew Blake. The app is designed to help people with mild to moderate ME/CFS better manage … Continue reading →

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Research review: HHV-6 infection & risk of CFS

Posted on 08/12/2021 by wames

Human Herpesvirus 6 infection and risk of Chronic Fatigue Syndrome: a Systematic Review and Meta-Analysis, by Mozhgani S-H, Rajabi F, Qurbani , M, Erfani Y, Yaslianifard S, Moosavi A, Pourrostami K, Baradaran Bagheri A, Soleimani A, Behzadian F, Safavi M, … Continue reading →

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Make severe ME visible – Severe ME day, Sun 8 Aug 2021

Posted on 08/08/2021 by wames

Making severe ME visible   An estimated 25% of people with ME are so ill they rarely leave their homes or beds. They feel invisible and ignored. On Severe ME day each year, 8th August, we make a special effort … Continue reading →

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Introducing WAMES volunteer with severe ME: Michelle

Posted on 08/08/2021 by wames

Introducing WAMES trustee & social media volunteer: Michelle Penny   Hello, my name is Michelle. I was diagnosed with ME at the age of 10, although it is thought I may have had the condition for about 2 years before … Continue reading →

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Research: CFS: an emerging sequela in COVID-19 survivors? (Italy)

Posted on 08/05/2021 by wames

Chronic fatigue syndrome: An emerging sequela in COVID-19 survivors?, by Elisa Mantovani, Sara Mariotto, Daniele Gabbiani, Gianluigi Dorelli, Silvia Bozzetti, Angela Federico, Serena Zanzoni, Domenico Girelli, Ernesto Crisafulli, Sergio Ferrari, Stefano Tamburin in Journal of NeuroVirology August 2, 2021   Research … Continue reading →

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