Category Archives: News
Video: Fatigue, pacing & PEM – lessons for long COVID from ME/CFS
Fatigue, Pacing and PEM management: lessons from ME/CFS – with Dr Ben Marsh Dr Asad Khan talks to Dr Ben Marsh about his experience of ME/CFS over the last 4 years, and what lessons the Long COVID community can … Continue reading
UK Gov told: measure the percentage of people who developed CFS/ME after being infected with covid-19
Risk that debilitating fatigue after covid-19 might last years: Evidence report for the House of Lords Select Committee on Risk Assessment and Risk Planning (RSK0037), by Caroline Kamau, Birkbeck (University of London) January 27, 2021 The House of Lords … Continue reading
Warning signals of Post-Exertional Malaise in ME/CFS
Warning Signals of Post-Exertional Malaise in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: A retrospective analysis of 197 patients, by Alaa Ghali, Carole Lacout, Maria Ghali, Aline Gury, Estelle Delattre, Christian Lavigne and Geoffrey Urbanski in J. Clin. Med. 2021, 10(11), 2517; … Continue reading
Carers Week 2021: make caring visible and valued
Carers Week is an annual campaign to raise awareness of caring, highlight the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK. It also helps people who don’t think of themselves as … Continue reading
Post-exertional malaise may be related to central blood pressure, sympathetic activity & mental fatigue in CFS patients
Post-exertional malaise may be related to central blood pressure, sympathetic activity and mental fatigue in Chronic Fatigue Syndrome patients, by Slawomir Kujawski, Joanna Slomko, Lynette Hodges, Derek F H Pheby, Modra Murovska, Julia L Newton, Paweł Zalewski in J. Clin. … Continue reading
Volunteer with WAMES – be the missing piece of the Team
Volunteer with WAMES – Could you be the missing piece? WAMES is a charity run solely by volunteers who wish to ‘make a difference for ME‘ in Wales. We invite you to share your skills, experiences, ideas and … Continue reading
Medical school education on ME
Medical school education on Myalgic Encephalomyelitis, by Nina Muirhead, John Muirhead, Grace Lavery and Ben Marsh in Medicina 2021, 57(6), 542; [doi.org/10.3390/medicina57060542] 28 May 2021 (This article belongs to the Special Issue ME/CFS: Causes, Clinical Features and Diagnosis) Research abstract: … Continue reading
Introducing WAMES volunteers: Tony Thompson
Introducing WAMES volunteers: Acting Secretary How on earth did I get involved in ME? Like several other major changes in my life, such as becoming a librarian and then a lecturer (the last thing I ever wanted to do … Continue reading
Identifying & managing suicidality in ME/CFS
Identifying and managing suicidality in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Lily Chu, Meghan Elliott, Eleanor Stein, Leonard A Jason in Healthcare Vol 9, #6, 629 May 25, 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very … Continue reading
Theory: treatments for prolonged ICU patients may provide new therapeutic avenues for ME/CFS
Theory: treatments for prolonged ICU patients may provide new therapeutic veanues for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), by Dominic Stanculescu, Lars Larsson and Jonas Bergquist in Front. Med. 7 May 2021 [doi.org/10.3389/fmed.2021.672370] Article abstract: We here provide an overview of … Continue reading