Category Archives: News
Adolescent & young adult ME/CFS after confirmed or probable COVID-19
Adolescent and young adult ME/CFS after confirmed or probable COVID-19, by Lindsay S Petracek, Stacy J Suskauer, Rebecca F Vickers, Neel R Patel, Richard L Violand, Renee L Swope, Peter C Rowe in Frontiers in Medicine Vol 8, p 668944 , April … Continue reading
Elements of suffering in ME/CFS… in the severely & very severely affected
Elements of suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the experience of loss, grief, stigma, and trauma in the severely and very severely affected, by Patricia A Fennell, Nancy Dorr and Shane S George in Healthcare 2021, 9(5), 553; [doi.org/10.3390/healthcare9050553] 9 May … Continue reading
If you are living with ME – #YouAreNotAlone #MillionsMissing
ME Awareness day 12th May 2021 – Post-viral illness is not new!
May 12th is International ME Awareness day During 2020 and 2021 the world has been shocked, particularly in the West, by the indiscriminate damage that a virus can have. Chronic post-viral illness has been catapulted into the spotlight. But … Continue reading
Humility and acceptance: working within our limits with Long COVID & ME/CFS
Humility and acceptance: working within our limits with Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Simon Decary, Isabelle Gaboury, Sabrina Poirier, Christiane Garcia, Scott Simpson, Michelle Bull, Darren Brown, Frederique Daigle in Journal of Orthopaedic & Sports Physical Therapy Vol 51, … Continue reading
From DNA to drug development. Five success stories show the potential of DecodeME
DecodeME Study blog: From DNA to drug development. Five success stories show the potential of DecodeME How do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can … Continue reading
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, by Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey in Molecular Genetics and Metabolism Vol 132, Supp 1, April 2021, Pages S194-S195 … Continue reading
Recovery from paediatric CFS – definitions are highly variable
Recovery from chronic fatigue syndrome: a systematic review-heterogeneity of definition limits study comparison, by Yasmin Moore, Teona Serafimova, Nina Anderson, Hayley King, Alison Richards, Amberly Brigden, Parisa Sinai, Julian Higgins, Caitlin Ascough, Philippa Clery, Esther M Crawley in Arch Dis … Continue reading
Long COVID & ME/CFS – a systemic review & comparison of clinical presentation & symptomatology
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a systemic review and comparison of clinical presentation and symptomatology, by Timothy L Wong, Danielle J Weitzer in Medicina 2021, 57(5), 418; [doi.org/10.3390/medicina57050418] Review abstract: Background and Objectives: Long COVID … Continue reading
Development of an inertial measurement-based assessment of disease severity in CFS
Development of an inertial measurement-based assessment of disease severity in Chronic Fatigue Syndrome, by Turner Palombo, Suzanne Vernon, Shad Roundy in Digital Commons (Utah Space Grant Consortium grant) 2020 Paper 11. Published May 2021 Research abstract: While myalgic encephalomyelitis/chronic … Continue reading
