Tag Archives: adolescents
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
Poor quality of life in young people with ME/CFS
An ME Research UK article comments on the recent research in Norway into adolescents with CFS: For such a devastating illness, there is surprisingly little information in the scientific literature about patients’ experiences of living with ME/CFS day-to-day. The few … Continue reading
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
