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IACFS/ME Virtual Conference, Friday August 21 2020
IACFS/ME 2020 Virtual Conference – Friday 21 August The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) is excited to invite you to our first virtual research conference to be held on August 21, 2020! This half-day, Zoom-based meeting … Continue reading
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Tagged biomedical research, IACFS/ME, virtual conference
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Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness
European Parliament Press Release: Myalgic Encephalomyelitis: MEPs call for more funds for research into complex illness 18 June 2020 An estimate of 2 million Europeans affected by the disease ME/CFS is still poorly understood and consequently, underdiagnosed . Increasing awareness … Continue reading
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Tagged biomedical research, European Parliament
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Scientists call for more European research on ME/CFS
European ME Coalition Press Release: Scientists call for more European research on ME/CFS, 10 June 2020 More than one hundred scientists have signed an open letter calling for more European research into the illness Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). … Continue reading
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Tagged biomedical research, Carmen Scheibenbogen, European ME Coalition, European Parliament, Evelien Van Den Brink, Prof Jonas Bergquist
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The concept of ‘illness without disease’ impedes understanding of CFS: a response to Sharpe & Greco
The concept of ‘illness without disease’ impedes understanding of chronic fatigue syndrome: a response to Sharpe and Greco, by Steven Lubet, David Tuller in BMJ Medical Humanities. Published Online First: 01 June 2020. [doi: 10.1136/medhum-2019-011807] Article abstract: In a … Continue reading
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Tagged biomedical research, CBT, cognitive behavioural therapy, GET, graded exercise therapy, Monica Greco, PACE trial, Prof David Tuller, Prof Michael Sharpe, psychosomatic, Steven Lubet
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Biomedical insights that inform the diagnosis of ME/CFS
Biomedical insights that inform the diagnosis of ME/CFS, by Brett A Lidbury, & Paul R Fisher, in Diagnostics 2020, 10(2), 92; [doi.org/10.3390/diagnostics10020092] (This article belongs to the Special Issue Biomedical Insights that Inform the Diagnosis of ME/CFS) Editorial announcing … Continue reading
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Tagged biomedical research, diagnosis, Paul Fisher, Prof Brett Lidbury
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Register your interest today in taking part in ME/CFS genome-wide research!
The ME/CFS Biomedical Partnership Genome-wide association study The ME/CFS Biomedical Partnership is working on a funding application to be made in early 2020 to the MRC/NIHR for a genome-wide association study. How can we help? They need to demonstrate … Continue reading
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Tagged biomedical research, ME/CFS Biomedical Partnership
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Petition to European Parliament by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on ME
European Parliament 2019-2024 – Committee on Petitions 30.8.2019 NOTICE TO MEMBERS Subject: Petition No 0204/2019 by Evelien Van Den Brink (Dutch) on a request for funding for biomedical research on Myalgic Encephalomyelitis 1. Summary of petition The petitioner refers to … Continue reading
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Tagged biomedical research, European Parliament, Evelien Van Den Brink, Petition
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How best to advance ME/CFS research
Responses to Request for Information: Soliciting Input on How Best to Advance Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research in the National Institute of Neurological Disorders and Stroke blog, USA, 20 Aug 2019 Purpose: In 2018 the National Institute of Neurological … Continue reading
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Tagged biomedical research, NANDS, National Advisory Neurological Disorders and Stroke, National Institute of Neurological Disorders and Stroke, NINDS
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ME & CFS need rigorous science & respectful collaboration
ME & CFS need rigorous science & respectful collaboration. There has been a flurry of articles in the media recently accusing internet trolls of forcing a few researchers out of ME/CFS research. WAMES takes the view that all research should … Continue reading
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Tagged biomedical research, collaboration, cooperation
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UK parliament Q&A: CFS Research
UK House of Commons Written Questions and Answers: Chronic Fatigue Syndrome: research: Written question – 221619, & 221620. 22 February 2019. Question 1: Asked by Sharon Hodgson (MP Washington & Sunderland) 14 February 2019 To ask the Secretary of … Continue reading
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Tagged biomedical research, Caroline Skidmore MP, Medical Research Council, MRC, National Institute for Health Research, NIHR, Sharon Hodgson MP, Steve Brine MP
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