Tag Archives: young people
Narratives of young people living with a diagnosis of CFS/ME
Thesis abstract: CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) is a distressing and potentially debilitating condition. It can also be understood as a contested condition, surrounded by controversy about its nature, causes and treatment. Previous research indicates that those affected experience this climate of contestation as a … Continue reading
A qualitative study of depression in young people with CFS/ME
Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading
Poor self-esteem found in adolescents with CFS
Research abstract: Background: The self and self-experience are often assumed to play an important role in adolescent patients presenting with severe somatic symptoms and bodily distress. Nonetheless, most empirical work on this subject is confined to studies of personality and … Continue reading
Clonidine has little effect on autonomic cardiovascular & orthostatic symptoms in adolescents with CFS
Research abstract: Background: Chronic Fatigue Syndrome (CFS) is a common and disabling condition in adolescence with few treatment options. A central feature of CFS is orthostatic intolerance and abnormal autonomic cardiovascular control characterized by sympathetic predominance. We hypothesized that symptoms … Continue reading
Children with CFS use more of their brain to concentrate
Research abstract: The ability to divide one’s attention deteriorates in patients with childhood chronic fatigue syndrome (CCFS). We conducted a study using a dual verbal task to assess allocation of attentional resources to two simultaneous activities (picking out vowels and … Continue reading
Poor quality of life in young people with ME/CFS
An ME Research UK article comments on the recent research in Norway into adolescents with CFS: For such a devastating illness, there is surprisingly little information in the scientific literature about patients’ experiences of living with ME/CFS day-to-day. The few … Continue reading
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
Working with uncertainty: health professionals & children with CFS/ME
Research abstract: This grounded theory study explores conceptualisations of chronic fatigue syndrome/myalgic encephalomyelitis from semi-structured interviews with 10 health-care professionals working with children and adolescents. The findings suggest that a lack of a clear empirical understanding of chronic fatigue syndrome/myalgic … Continue reading
POTS & CFS affects blood volume in exercise for adolescents
Abstract Postural orthostatic tachycardia syndrome (POTS) is characterized by chronic fatigue and dizziness and affected individuals by definition have orthostatic intolerance and tachycardia. There is considerable overlap of symptoms in patients with POTS and chronic fatigue syndrome (CFS), prompting speculation … Continue reading
Adolescents’ experiences of living with CFS
‘Sometimes it feels as if the world goes on without me’: adolescents’ experiences of living with chronic fatigue syndrome Abstract Aims and objectives: To explore the experience of being an adolescent with chronic fatigue syndrome. BACKGROUND Despite ample research, chronic … Continue reading
