Monthly Archives: August 2014
Understand – don’t judge: a video about ME
By adapting a famous fairy tale to present ME as a cruel spell that can’t be broken, Hollie Ransley hopes to stop others mistaking the medical condition for laziness and that the Sleeping Beauty film she’s made with Fixers – … Continue reading
Warning against overstating recovery in CFS PACE trial
Commenting on a recently published report of a large-scale evaluation of behavioral interventions for chronic fatigue syndrome (CFS), Fred Friedberg, PhD and Jenna Adamowicz warned against overstating the capacity of any currently available therapy to produce recovery from CFS. In … Continue reading
Irritable bowel syndrome and chronic fatigue 6 years after Giardia infection
ABSTRACT Background: Functional gastrointestinal disorders and fatigue may follow acute infections. This study aimed to estimate the persistence, prevalence and risk of irritable bowel syndrome and chronic fatigue six years after Giardia infection. Methods: Controlled prospective study of a cohort … Continue reading
Free online course for carers
This course was developed with and for carers by the Open University Scotland. It will help you gain a clearer understanding of who you are, identify your personal qualities and recognise the range of skills and abilities you’ve developed from … Continue reading
ME Cover up – Severe ME Day August 8th 2014
the ME cover up Many people with ME feel they are invisible to the outside world and that ME is not taken seriously. “We may not be able to present ourselves to the world because of severe ill health but … Continue reading
Chronic fatigue and RLS can be caused by iron deficiency
Iron deficiency (absolute or functional) is commonly observed (frequently without associated anemia) in up to one third of old people. Iron deficiency is the most cause of anemia in adults. Many non hematological consequences of iron deficiency are described like: … Continue reading
Lyme disease becoming more widespread & needs new healthcare approach
Abstract Lyme disease, caused by Borrelia burgdorferi and transmitted by ticks, was initially considered a recent, rare and regional occurrence. We now have evidence that very similar bacteria infected humans in Europe during the ice age (Keller et al., 2012). … Continue reading
What do patients and carers want from health apps? survey
PatientView and Health 2.0 are undertaking a short survey which is an opportunity for patients and carers to tell app developers how health apps can be improved to better meet the needs of patients and carers. The survey is open … Continue reading
What do you think the Children’s commissioner’s role should be?
Children, young people and adults are all asked to submit evidence. The survey is part of a wide-ranging review into the role and functions of the Commissioner, looking the role’s impact, accountability, effectiveness, accessibility and more. In the past ME … Continue reading
Save Funky Dragon (Children and Young People’s Assembly) petition
The Welsh Government has decided to withdraw core funding for Wales’ National Children and Young People’s Assembly with effect from September 30th this year and has recently announced that no other Welsh Government funding will be made available. Funky Dragon … Continue reading
