Author Archives: wames
Online pacing tutorial begins January 2019
Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading
Dr Anne McIntyre RIP
A long time advocate and sufferer of ME, Dr Anne McIntyre, died on Saturday 24th November 2018. She had been living with rheumatoid arthritis for many years and developed pulmonary fibrosis as a complication of that. Her book M.E. Chronic … Continue reading
Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS
Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, by C (Linda) M van Campen, Peter C Rowe and Frans C Visser in Front. Pediatr., 16 November 2018 Introduction: Orthostatic intolerance is common among … Continue reading
Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms
Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms, by C (Linda) Van Campen, Peter C Rowe and Frans C Visser in Front. Pediatr. Oct 2018 Introduction: Conflicting data have been published on the reduction of circulating blood … Continue reading
A poem about Me and M.E – One stupid dot
‘What’s up TV’ presents a 2 minute poem by Stacy Hart: Me and M.E, how ‘One Stupid Dot’ makes all the difference Stacy’s blog: Mama Chill…Stacy Hart…Runnin On Empty
The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions
The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading
Workwell’s two-day exercise tests & breaking the deconditioning dilemma in ME/CFS
Workwell’s two-day exercise tests and breaking the deconditioning dilemma in Chronic Fatigue Syndrome (ME/CFS) by Cort Johnson in Health rising blog, 19 Nov 2018 The first word in the first sentence of the paper says it all: “Concise methodological directions for … Continue reading
Associations between clinical symptoms, plasma norepinephrine & deregulated immune gene networks in subgroups of adolescents with CFS
Associations between clinical symptoms, plasma norepinephrine and deregulated immune gene networks in subgroups of adolescent with Chronic Fatigue Syndrome, by Chinh Bkrong Nguyen, Surendra Kumar, Manuela Zucknick, Vessela N Kristensen, Johannes Gjerstad, Hilde Nilsen, Vegard BruunWyller, in Brain Behav Immun. 2018 … Continue reading
Shop this Christmas on Amazon Smile & raise funds free for WAMES
You shop. Amazon gives, with a smile. Amazon will donate 0.5% of the net purchase price of eligible purchases to the charitable organisation of your choice. Choose WAMES! AmazonSmile is the same Amazon you know. Same products, same prices, same … Continue reading
