Author Archives: wames

CFS treatment ‘should be withdrawn’

BBC newsbeat report, 8 May 2019: Chronic fatigue syndrome treatment ‘should be withdrawn’ A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK’s leading experts in the illness. Dr Charles Shepherd says graded … Continue reading

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BBC Newsbeat documentary: M.E. and me

BBC Newsbeat film: M.E. And Me Presenter Emma Donohoe was diagnosed with M.E. when she was 19, an illness which many doctors don’t understand and people still talk about as “yuppy flu” – thinking sufferers are being lazy or too depressed … Continue reading

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Patients with CFS do not score higher on the autism-spectrum quotient than healthy controls

Patients with chronic fatigue syndrome do not score higher on the autism-spectrum quotient than healthy controls: Comparison with autism spectrum disorder, by Indre Bileviciute‐Ljungar, Daniel Maroti, Susanne Bejerot in Scandanavian Journal of Psychology 2018 May 8   Research abstract: Clinically, there … Continue reading

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ME Awareness week 7-13 May 2018 – campaign season!

ME Awareness week 7-13 May 2018 – campaign season!   International ME Awareness day began in 1993. American Tom Hennessey chose the birthdate of Florence Nightingale, as she was stricken by an ME-type illness in her 30s and was often … Continue reading

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Childhood sleep & adolescent CFS/ME

Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): evidence of associations in a UK birth cohort, by SM Collin, T Norris, P Gringras, PS Blair, K Tilling, E Crawley in Sleep Med. 2018 Jun;46:26-36. OBJECTIVE/BACKGROUND: Sleep abnormalities are characteristic of … Continue reading

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Are probiotic treatments useful on FM or CFS patients?

Review abstract: Are probiotic treatments useful on fibromyalgia syndrome or chronic fatigue syndrome patients? A systematic review, by P. Roman, F. Carrillo-Trabalón, N. Sánchez-Labraca, AF Estévez, D. Cardona in Benef Microbes. 2018 Apr 26:1-10 [Epub ahead of print] Evidence suggests … Continue reading

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#TimeForUnrestWales – Join the campaign!

#TimeForUnrestWales a campaign for health equality and the recognition of the neurological condition of ME Much work is needed to put ME & CFS on an equal basis with other neurological conditions! WAMES is asking the Cabinet Secretary for Health: … Continue reading

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The Autoimmune Virus? Groundbreaking EBV finding could help explain ME/CFS

Simmaron Research blog post, by Cort Johnson, 30 April 2018: The Autoimmune Virus? Groundbreaking EBV Finding Could Help Explain ME/CFS Viral Mystery  “I’ve been a co-author in almost 500 papers. This one is more important than all of the rest … Continue reading

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#TimeForUnrestWales – the struggle to get an accurate diagnosis

#TimeForUnrestWales  a campaign for recognition of ME and health equality There is a Health and Social Care crisis for people with ME in Wales, starting with the struggle patients have to find an accurate diagnosis from doctors who understand ME. … Continue reading

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#TimeForUnrestWales – May 12th International ME Awareness Day 2018

It is #TimeForUnrestWales Over the last few years a number of global campaigns have been launched to raise awareness of ME. Here in Wales they have struck a chord and we have been adding our voice to those around the … Continue reading

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