Author Archives: wames
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
Is mitochondrial function abnormal in ME/CFS?
ME Research UK article, 12 January 2017: Is mitochondrial function abnormal? Mitochondria are often referred to as the power plants of the body because they are responsible for generating nearly all the energy needed to support life. These kidney bean-shaped … Continue reading
PACE trial data assessment: in ME/CFS CBT and GET are ineffective
Research abstract: The PACE trial concluded that Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) are moderately effective in managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and yielded a 22% recovery rate. Nonetheless, the recently released individual participant data shows … Continue reading
Inquest into death of person with severe ME in North Wales
Daily Post article, by Gareth Hughes, 12 January 2017: Coroner questions bed-blocking at Maelor Hospital after woman accidentally killed herself in A&E A coroner is to ask what steps are being taken to tackle the problem of bed-blocking at the Maelor … Continue reading
Narratives of parents living with a child affected by CFS/ME
Research abstract: Background and Aims: Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) remains a poorly understood condition, shrouded by debate, stigma, and uncertainty. Unsurprisingly, the little available research suggests that caring for a Child or Young Person (CYP) affected by the condition can be extremely challenging. … Continue reading
The Brain Initiative: FM & ME/CFS perspective
Health rising blog post, by Cort Johnson, 8 Jan 2017: The Brain Initiative: a Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS) perspective In the third of three blogs looking at the research efforts of tomorrow and their potential impact on fibromyalgia and … Continue reading
