Author Archives: wames
Postexertion ‘crash,’ not fatigue per se, marks CFS
Medscape Medical News article, by Miriam Tucker, November 04, 2016: Post exertion ‘Crash,’ not Fatigue per se, Marks Syndrome Article extract: The name “chronic fatigue syndrome” is being phased out not just because it is viewed as trivializing a condition that renders … Continue reading
PACE-gate: when clinical trial evidence meets open data access
Article abstract: Science is not always plain sailing and sometimes the voyage is across an angry sea. A recent clinical trial of treatments for chronic fatigue syndrome (the PACE trial) has whipped up a storm of controversy. Patients claim the … Continue reading
The most extreme consequence of ME/CFS – trauma & premature death
Livets bilder (Life images) blog post, 25 October 2016: The most extreme consequence – trauma and premature death (Originally written in Swedish) In this post I will write about something that I see as the most extreme consequence of what I … Continue reading
Which countries conduct ME/CFS research?
Phoenix rising forum post, by HIP, January 2016: Why so little ME/CFS research from France and Germany? There seems to be little ME/CFS research done in France and Germany, relative to their overall scientific output. Why is this? Using a … Continue reading
FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
Fear & avoidance or a desire for participation? a look at PEM
Livets bilder blog post, by Swedish blogger, 29 October 2016: Fear and avoidance or a desire for participation? A cardinal symptom of ME/CFS is Post-Exertional Malaise (PEM): “There is an inappropriate loss of physical and mental stamina, rapid muscular and … Continue reading
Causes and consequences of autonomic dysfunction in CFS
Thesis abstract: Introduction: Chronic Fatigue Syndrome (CFS) is an incapacitating condition characterised by extreme fatigue. In the absence of an objective diagnostic test CFS remains a clinical diagnosis based on a broad spectrum of symptoms, including autonomic dysfunction and cognitive … Continue reading
A patient’s experience of ME/CFS and gaslighting
The Mighty blog post, by Siobhan Simper, 18 Oct 2016: We cannot continue to let doctors ‘Gaslight’ chronic illness patients Author’s warning: This post contains experiences of gaslighting and abuse. Recently, I saw an all-too-common meme on social media: the inspirational disabled … Continue reading
