Author Archives: wames

#newWAMESwebsite fund is growing!

#newWAMESwebsite total reaches £350   A big thank you to Sharon’s birthday fundraiser friends for raising more money to add to other income which gives us an extra £150 to develop a new website. Read about the new website adventure … Continue reading

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Research: Urine – another way to show inability to cope with exercise in ME/CFS

Urine shows abnormal reaction to exercise in ME/CFS   A small study of 8 women gave surprising results when their urine was examined after an exercise test and compared to healthy people. “Our most unanticipated discovery is the lack of … Continue reading

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Orthostatic intolerance & chronotropic incompetence in ME

OI and CI in ME   Orthostatic intolerance and chronotropic incompetence in patients with Myalgic Encephalomyelitis or Chronic Fatigue Syndrome, by K Miwa in Circulation Reports 2023; 5: 55–61 [doi:10.1253/circrep.CR-22-0114] Research abstract: Orthostatic intolerance is a common symptom in ME/CFS, … Continue reading

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Research: Distinguishing ME/CFS & FM

Distinguishing ME/CFS and FM through gene expression   Canadian researchers have measured the activity (expression) of genes in people with ME/CFS and Fibromyalgia. 3 of the 11 miRNA were over-expressed in ME/CFS and under-expressed in FM. These three miRNAs could … Continue reading

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The World ME Alliance & the WHO discuss disability health equity

The WMEA engages with the WHO over disability health equity   Following the World ME Alliance’s letter to the World Health Organization (WHO) highlighting critical gaps in their “Global report on health equity for persons with disabilities”, we have met with … Continue reading

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Research: Different risk factors distinguish ME/CFS from severe fatigue

Severe Fatigue is not the same as ME/CFS   US researchers led by Prof Komaroff found that severe fatigue was much more common than ME/CFS in a large group of nurses and the triggers were different. There was an increased … Continue reading

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Are you good at maths and budgets?

WAMES is looking for a Treasurer   Liz is retiring, for a second time! She helpfully stepped up when Simon left last year, but now she really needs to call it a day. The Treasurer is critical to our work … Continue reading

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Research: Impact of misdiagnosis in studies of ME/CFS

Researchers need to increase study sizes and apply strict diagnostic criteria   Polish researchers report that the difficulties with diagnosing ME/CFS and ensuring all research participants have the same condition, can lead to inaccurate research results. Misdiagnosis can skew results … Continue reading

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Biomarker research: Differentiating ME and FM

Differentiating ME and FM   Canadian researchers believe they have uncovered a way to tell the difference between people with ME, FM and both ME + FM. 11 miRNAs (microRNAs) are proposed as potential biomarkers. microRNA is the name of … Continue reading

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#newWAMESwebsite fundraising challenge!

WAMES needs a new website   The WAMES website has been showing its age for years so we are relieved to be in a position now in 2023 to be able to  upgrade it. This won’t happen overnight as it … Continue reading

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