Author Archives: wames
World ME day 2023 – theme: PEM
2023 World ME Day campaign announced From the World ME Alliance: The theme for World ME Day 2023 will be the hallmark symptom of ME: post-exertional malaise. The campaign is all about changing the narrative, so that globally people … Continue reading
Research: Transcriptomics: female ME/CFS patients responded differently to an exercise challenge
Disrupted immune signatures found in females with ME/CFS US researchers found that female ME/CFS patients responded differently to an exercise challenge that stimulates PEM, compared to healthy females. They studied the RNA molecules in the cells (transcriptomics). The ME/CFS … Continue reading
Treatment harms to patients with ME/CFS – GET & CBT
A review of treatment harms to patients with ME/CFS Psychologist and researcher Dr David F Marks believes that as there is growing evidence that ME/CFS and PASC have similar symptoms “it seems highly possible that the same therapeutic approaches will … Continue reading
Hypothesis: Cerebrospinal fluid pressure increase in CFS & FM
The role of increased cerebrospinal fluid pressure in CFS and FM Belgian researchers reviewed research literature to find characteristics signs that are shared with empty sella syndrome and suggest that moderate or intermittent increases in cerebrospinal fluid pressure are … Continue reading
#WAMES_800 fundraising target reached!
£800 raised will keep WAMES working during 2023 Grateful thanks goes to the Carmarthenshire ME Support Group for donating £100. This means we have reached our #WAMES_800 fundraising goal and we will be able to pay bills for running … Continue reading
Call for WHO to recognise energy limiting disabilities
World ME Alliance highlights energy limiting disabilities As a founding member of the World ME Alliance WAMES joins ME organisations round the world in calling for better understanding in the WHO of the challenges people with ME and long … Continue reading
ME/CFS & Post-COVID Syndrome: a common neuroimmune ground
ME/CFS and Post-COVID syndrome – close relationship Russian researchers analysed the wide range of symptoms in people with ME/CFS and in those with long COVID, many of whom met the criteria for ME/CFS. The symptoms fell into the categories … Continue reading
Neuro Cafe, Aberystwyth 30 January 2023
Ceredigion neuro cafe A get together for people affected by neurological conditions. At Plas Antaron, Aberystwyth, SY23 1SF 11-1pm, 30 January, 27 February, 27 March 2023 Contact admin@hahav.org.uk 01970 611550
Research: Muscle sodium overload in patients with ME/CFS
Muscle sodium content in patients with ME/CFS A German team of researchers used magnetic resonance imaging (MRI) to measure levels of sodium in the tissues of the legs of people with ME/CFS and healthy people. Too much sodium can … Continue reading