Author Archives: wames
Gait automaticity in women with CFS
Research abstract: Patients with chronic fatigue syndrome (CFS) report difficulties walking for a prolonged period of time. This study compares gait automaticity between women with CFS and nondisabled controls. The “stops walking with eyes closed with secondary cognitive task” test … Continue reading
New year greetings from WAMES
New year greetings from the WAMES team. We hope you had the Christmas you needed and we wish you a healthier, happier, safe and dry 2016!
Lucy’s practical ways to show compassion to someone who is continually ill
Telegraph article: Living with chronic fatigue: How I wish my friends would treat me, by Lucy Mayhew , 21 December 2015. Bear Grylls and I have virtually nothing in common – the survival expert has a GTI turbo-charged body, whereas seven … Continue reading
DOPE: Delayed Onset Post Exertional fatigue
Dr John L Whiting explains why he thinks the term DOPE is better than PEM or PENE: One of the biggest nuisances that ME/CFS sufferers have to contend with is the post exertional fatigue component. This issue was an aspect … Continue reading
BBC TV show Doctors features ME
The BBC1 tv series ‘Doctors’ featured a very positive and very well researched programme on Dec 4 2015, which includes a segment with a man who has ME or CFS. Tony Britton from the ME Association advised the producers. Series 17 Episode … Continue reading
Close to collapse – Shocking report exposes failings in ME social care
Shocking’ report exposes failings in ME social care, By Raya Al Jadir in Disability News Service, November 13, 2015 A tiny proportion of disabled people with the neurological condition ME are receiving the social care they could be entitled to, according to … Continue reading
Evette’s life with ME – a living torture
Severely affected Evette describes having ME as a living torture in ITV news on 30 October 2015. Reporter Rob Osborne interviews Christalla Davies from support group MESiG and a local doctor about the seriousness of ME. Youtube video [2 mins 48 secs]
Interview with Ronald W Davis about his search for cure for sick CFS son
BBC interview with Ronald W Davis, Professor of Biochemistry and Genetics at Stanford University USA: Scientist dad searches for cure for sick son Whitney Dafoe was a healthy, well-travelled photographer until he contracted an illness that has been identified as … Continue reading
ME: symptoms & biomarkers
Review abstract: Myalgic Encephalomyelitis (ME) continues to cause significant morbidity worldwide with an estimated one million cases in the United States. Hurdles to establishing consensus to achieve accurate evaluation of patients with ME continue, fueled by poor agreement about case definitions, slow progress … Continue reading
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
