Author Archives: wames

‘Tis the season – a poem by Carw

‘Tis the season –  a poem by Carw   Surprised, yet again, by Autumnal torpor, and, in wondering what to do, as is our pain, I settle to observing rain, and the consequent habits of snails, and the number of … Continue reading

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In memoriam 2020

Gone, but not forgotten   As we approach 2021 we want to remember those we lost this year, including members of the ME community in Wales.   Helen Price Helen was a long time member of the Carmarthenshire ME support … Continue reading

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Christmas greeting from WAMES 2020

Wishing you all a relaxed and enjoyable Christmas, with working phone lines and good broadband access, to make contact with family and friends possible!     Thank you for all the support you have given WAMES during a challenging year. … Continue reading

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WAMES holiday helpline hours 2020-21

WAMES helpline hours   The WAMES helpline is run by volunteers and will be closed for part of the festive period.   helpline@wames.org.uk  0290 2051 5061 closed 1pm 24 – 29 December closed 31 Dec – 10am 3 Jan 2021 … Continue reading

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WAMES response to draft NICE ME/CFS guideline

WAMES response to draft NICE ME/CFS guideline   This week WAMES sent in our response to the ME/CFS guideline consultation. Thanks to all who sent us their comments on the guideline and to those who have shared their stories and … Continue reading

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Measuring improvement & deterioration in ME/CFS: the pitfalls of the Chalder Fatigue Questionnaire

Measuring improvement and deterioration in myalgic encephalomyelitis/ chronic fatigue syndrome: the pitfalls of the Chalder Fatigue Questionnaire, by Karen D Kirke in Journal of the Royal Society of Medicine Vol 114, Issue 2, 2021 December 15, 2020  [DOI: 10.1177/0141076820977843]   Adamson … Continue reading

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Potential causal factors of CFS/ME: a concise & systematic scoping review of factors researched

Potential causal factors of CFS/ME: a concise and systematic scoping review of factors researched, by  in Journal of Translional Medicine vol 18, no: 484 (2020) 14 December 2020   Review abstract: Background Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is understood as … Continue reading

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Informatics inference of exercise-induced modulation of brain pathways based on cerebrospinal fluid micro-RNAs in ME/CFS

Informatics inference of exercise-induced modulation of brain pathways based on cerebrospinal fluid Micro-RNAs in ME/CFS, by Vaishnavi Narayan, Narayan Shivapurkar and James N. Baraniuk in Netw Syst Med. 2020; 3(1): 142–158;  November 2020 [doi: 10.1089/nsm.2019.0009]   Research abstract: Introduction: The … Continue reading

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Raise money for WAMES at Christmas through Amazon Smile

You shop. Amazon gives, with a smile.  Choose WAMES!   AmazonSmile is the same Amazon you know. Same products, same prices, same service. Shop at smile.amazon.co.uk and they will donate to your favourite charitable organisation, at no cost to you. Go to … Continue reading

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Cardiac dimensions & function are not altered among females with the ME/CFS

Cardiac dimensions and function are not altered among females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by  Per Ole Iversen, Thomas Gero von Lueder, Kristin Reimers Kardel and Katarina Lien in Healthcare 2020, 8(4), 406 [doi.org/10.3390/healthcare8040406]   Research abstract: Background: Myalgic … Continue reading

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