Category Archives: News
From “sick” to “disabled”: my own journey
Chronic Illness Inclusion Project blog post, by Catherine Hale [person with ME], 13 June 2017: From “sick” to “disabled”: my own journey Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been … Continue reading
Trial By Error: The NICE “Topic Expert” Reports (FOI)
Virology blog post, by David Tuller, 11 September 2017: Trial By Error: The NICE “Topic Expert” Reports Freedom of Information requests to NICE My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) … Continue reading
Molecular underpinnings of ME/CFS explored at the Open Medicine Foundation Symposium
Health rising blog post, by Cort Johnson, 8 September: Molecular Underpinnings of ME/CFS Explored at the Open Medicine Foundation Symposium “This is not a disease that can be solved by one person. It needs a community, and lots of expertise. … Continue reading
Review of research into treatments for anxiety in children with CFS
Review abstract: What treatments work for anxiety in children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)? Systematic review, by Sarah Victoria Ellen Stoll, Esther Crawley, Victoria Richards, Nishita Lal, Amberly Brigden, Maria E Loades in BMJ Open Vol 7, #9, p e015481, September 5, 2017 … Continue reading
Altered right anterior insular connectivity & loss of associated functions in adolescent CFS
Research abstract: Altered right anterior insular connectivity and loss of associated functions in adolescent chronic fatigue syndrome, by LA Wortinger, M Glenne Oie, T Endestad, V Bruun Wyller in PLoS One. 2017 Sep 7;12(9) Impairments in cognition, pain intolerance, and … Continue reading
Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?
If you have, or are affected by, a neurological condition, the Wales Neurological Alliance wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With … Continue reading
Dr Martin Rhisiart ‘killed himself after ME diagnosis’
BBC News article, 5 September 2017: Dr Martin Rhisiart ‘killed himself after ME diagnosis’ A university professor who acted as an economics adviser for the UK government killed himself after being diagnosed with ME, an inquest in Cardiff has heard. Dr Martin Rhisiart, … Continue reading
Mental health resources now also available in Welsh
Families affected by ME or CFS may also on occasion find themselves under great psychological stress and could benefit with some help. Mind Cymru publishes information and offers support at all levels. Yn Mind Cymru rydym wedi ymrwymo i sicrhau bod … Continue reading
Is poor sleep pummeling the immune system in ME/CFS & FM
Simmaron Research blog post by Cort Johnson, 29 August 2017: Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Examined Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgia (FM) know the consequences of poor sleep … Continue reading
Invisible illness increases risk of suicidal ideation: the role of social workers in preventing suicide
Article abstract: Invisible illness increases risk of suicidal ideation: The role of social workers in preventing suicide, by Cathy L Pederson, Kathleen Gorman-Ezell, Greta Hochstetler-Mayer in Health & Social Work, June 14, 2017 [Preprint] Many chronic, invisible illnesses that involve chronic … Continue reading
