Category Archives: News
Sleep-wake rhythm disturbances & perceived sleep in adolescent CFS
Research abstract: Sleep-wake rhythm disturbances and perceived sleep in adolescent chronic fatigue syndrome, by M Pedersen, M Ekstedt, MC Småstuen, VB Wyller, D Sulheim, E Fagermoen, A Winger, E Pedersen, H Hrubos-Strøm in J Sleep Res. 2017 Oct; 26(5):595-601. [Epub 2017 … Continue reading
AfME invites PhD proposals for biomedical research pilot projects
Action for ME blog post, 10 Oct 2017: Call for biomedical PhD research proposals now open Action for M.E. is inviting PhD proposals for high-quality biomedical research pilot projects that will address the biology of Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome (CFS). … Continue reading
Defining & measuring recovery from ME and CFS – the physician perspective
Research abstract: Defining and measuring recovery from myalgic encephalomyelitis and chronic fatigue syndrome: the physician perspective, by Andrew R. Devendorf, Carly T. Jackson, Madison Sunnquist & Leonard A. Jason in Disability and Rehabilitation [Published online: 05 Oct 2017] Purpose: To … Continue reading
A physiotherapist with CFS: a life of ‘pacing and management’
PT in motion (American Physical Therapy Association) blog post, by Eric Ries 13 September 2017: The Real Story About Chronic Fatigue Syndrome Chronic fatigue syndrome (CFS) has come a long way since the 1980s, when it was widely dismissed as … Continue reading
ME/CFS Biobank gets £1.57m to measure changes in the immune system
CureME blog post, 3 October 2017: MAJOR ANNOUNCEMENT: $2.1m investment is UK’s ‘biggest ever investment into physical causes of ME/CFS’ The CureME team at The London School of Hygiene & Tropical Medicine is delighted to announce the award of $2.1m … Continue reading
Health care resource use by patients before & after a diagnosis of CFS/ME
Health care resource use by patients before and after a diagnosis of chronic fatigue syndrome (CFS/ME): A clinical practice research datalink study, by Simon Collin, Inger Bakken, Irwin Nazareth, Esther Crawley, & Peter D. White in BMC Family Practice. 18 20017 Research abstract: Background: Our … Continue reading
ME costs UK economy over £3 billion
Action for M.E. blog post, 28 Sep 2017: ME costs UK economy over £3 billion M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today. The figures account for healthcare costs, disability-related … Continue reading
You & yours on Radio 4 discusses treatment for ME & CFS
BBC Radio 4 programme You and yours invited Dr Charles Shepherd, Dr Esther Crawley and the general public to discuss what treatment is offered for ME & CFS and whether the NICE guidelines should be updated. You can listen … Continue reading
OMF resources for parents of children with ME/CFS
The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading
