Category Archives: News

Viruses and CFS: statement by Prof Robert Naviaux

Open Medicine Foundation blog post, 9 Sep 2016: Viruses and CFS: Statements by Ron Davis and Bob Naviaux Dr Bob Naviaux: Question – Many ME/CFS experts have improved the symptoms in some patients by treating with antivirals and Ampligen (polyIC double … Continue reading

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Viruses and CFS: statement by Prof Ron Davis

Open Medicine Foundation blog post, 9 Sep 2016: Viruses and CFS: Statements by Ron Davis and Bob Naviaux Prof Ron Davis: There is a great deal of evidence that a variety of viruses can initiate ME/CFS, but it is less clear … Continue reading

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MPs call for medical cannabis to be made legal

BBC news article, by Michelle Roberts, 13 September 2016: MPs call for medical cannabis to be made legal Taking cannabis for medical reasons should be made legal, says a cross-party group of UK politicians. The All Party Parliamentary Group on … Continue reading

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A better way to measure ME/CFS experience is needed

Research abstract: PURPOSE: Debilitating fatigue is a core symptom of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS); however, the utility of patient-reported symptom outcome measures of fatigue for ME/CFS patients is problematic due to ceiling effects and issues with reliability and validity. … Continue reading

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CFS is not merely dysbiosis

Psychiatry advisor article, by Theodore Henderson, MD, PhD, 2 September 2016: Chronic Fatigue Syndrome is Not Merely Dysbiosis Dr. Henderson suggests treating Myalgic Encephalomyelitis/Chronic Fatigue Syndrome with antivirals rather than with antidepressants. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome likely has a viral … Continue reading

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Dysregulation of protein kinase gene expression in NK Cells in CFS

Research abstract: BACKGROUND: The etiology and pathomechanism of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) are unknown. However, natural killer (NK) cell dysfunction, in particular reduced NK cytotoxic activity, is a consistent finding in CFS/ME patients. Previous research has reported significant changes … Continue reading

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Millions missing – what’s your empty shoes story?

ME Action blog post, by Fleur Eliza: Empty shoes A few years after getting ill, I discovered that I can write interesting stories about things that happen inside or close to my home: for instance, about birds or cats visiting … Continue reading

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Treatment of insomnia reduces fatigue in CFS

Research abstract: Background: Effectiveness of cognitive behavioural therapy for insomnia (CBT-I) has not been explored in Chronic Fatigue Syndrome (CFS), a condition where disturbed sleep is a principal symptom. This study aimed to report feasibility, acceptability and initial effectiveness of … Continue reading

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Song by Naomi Flanagan about the Millions Missing

Naomi Flanagan’s song was written in support of the #MillionsMissing protests that are happening globally in 2016 to demand more awareness of and research funding for the condition ME/CFS. Jenny was a painter  [4 mins] Jenny was a painter Her … Continue reading

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Millions missing – add yourself to the global disease map

The group ME Advocacy is asking everyone with ME to place themselves onto www.diseasemaps.org under “Chronic Fatigue Syndrome/M.E.”.  This will help the “Millions missing” with this “Forgotten Plague” to be more visible, and will help people find others in their … Continue reading

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