Category Archives: News

Reversal of Refractory Ulcerative Colitis & severe CFS symptoms

Case report abstract: BACKGROUND: Patients with multisymptom chronic conditions, such as refractory ulcerative colitis (RUC) and chronic fatigue syndrome (CFS), present diagnostic and management challenges for clinicians, as well as the opportunity to recognize and treat emerging disease entities. In … Continue reading

Posted in News | Tagged , , | Comments Off on Reversal of Refractory Ulcerative Colitis & severe CFS symptoms

2016 – In remembrance

Yet still I must demand and demand again. Their death demands we ask for integrity and truth. But there is so little of it out there All lost in compromise or outright denial and ignorance. The dead grow, Shockingly. Loved … Continue reading

Posted in News | Tagged , , | Comments Off on 2016 – In remembrance

Severe ME Remembrance Day, 8 Aug 2016

Severe Myalgic Encephalomyelitis Understanding and Remembrance Day August 8th 2016 Why have an Understanding and Remembrance Day highlighting the plight of the severely affected? The severity of this illness often makes it impossible for people to have contact with loved … Continue reading

Posted in News | Tagged , , , | Comments Off on Severe ME Remembrance Day, 8 Aug 2016

Effects of telephone-delivered cognitive behavioral stress management intervention in CFS

Research abstract: The perceived impact of chronic fatigue on daily living (i.e., fatigue interference) is particularly relevant for patients diagnosed with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), a medically unexplained illness associated with neuroendocrine and immune abnormalities. Literature suggests that fatigue … Continue reading

Posted in News | Tagged , , , , , , , , , , | Comments Off on Effects of telephone-delivered cognitive behavioral stress management intervention in CFS

Neuromuscular strains in ME/CFS

ME Research UK research article, 2 August 2016: Neuromuscular strains In the diagnosis and assessment of ME/CFS, there is a great need for simple objective measures that can differentiate the condition from other chronic illnesses, particularly after 24 or 48 … Continue reading

Posted in News | Tagged , , , , | Comments Off on Neuromuscular strains in ME/CFS

Three approaches to CFS in the UK, Australia, & Canada: lessons for democratic policy

Research abstract: Decisions about diagnostic categories through clinical practice guidelines (CPGs) represent a central type of informal policy-making which affect the scope of publicly-regulated health services and directions for future research. We examine the development of three diverse sets of CPGs for chronic fatigue … Continue reading

Posted in News | Tagged , , , | Comments Off on Three approaches to CFS in the UK, Australia, & Canada: lessons for democratic policy

Human herpesvirus 6 and 7 are biomarkers for fatigue

Research highlights: Salivary HHV-6 and HHV-7 can be used for assessment of physiological fatigue. Activation and differentiation of macrophages are needed for viral reactivation. Salivary HHV-6 and HHV-7 do not increase with pathological fatigue. Salivary HHV-6/7 can distinguish between physiological … Continue reading

Posted in News | Tagged , , , , , | Comments Off on Human herpesvirus 6 and 7 are biomarkers for fatigue

Genetic evaluation of metabolic enzymes in CFS

Research abstract: Chronic fatigue syndrome (CFS) is a disease that can seriously impair one’s quality of life; patients complain of excessive fatigue and myalgia following physical exertion. This disease may be associated with abnormalities in genes affecting exercise tolerance and … Continue reading

Posted in News | Tagged , , | Comments Off on Genetic evaluation of metabolic enzymes in CFS

Key research needs in ME/CFS – responses to US request for info

National Institutes of Health press release, 29 July 2016: NIH Request for Information on ME/CFS Research Efforts On May 24, 2016, the Trans-NIH ME/CFS Working Group published a Request for Information seeking the public’s input on needs, opportunities and strategies for … Continue reading

Posted in News | Tagged , , , | Comments Off on Key research needs in ME/CFS – responses to US request for info

Assessment of self-management methods for severe CFS

Research abstract: Purpose: To assess the efficacy of fatigue self-management for severe chronic fatigue syndrome (CFS). Methods:  This randomized trial enrolled 137 patients with severe CFS. Participants were randomized to one of three conditions: fatigue self-management with web diaries and … Continue reading

Posted in News | Tagged , , , , | Comments Off on Assessment of self-management methods for severe CFS