Category Archives: News
Activity pacing is associated with better & worse symptoms in long term conditions
Research abstract: Background: Activity pacing has been associated with both improved and worsened symptoms, and its role in reducing disability among patients with long-term conditions has been questioned. However, existing studies have measured pacing according to uni-dimensional subscales, and therefore the empirical evidence for … Continue reading
Gastric enterovirus infection: a possible cause of gastroparesis
Research abstract: BACKGROUND: Gastroparesis (GP) is a disabling chronic gastroenterologic disorder with high morbidity that severely impacts patients’ quality of life. GP can present acutely after a viral-like gastrointestinal illness resulting in speculation that in some patients, neurologic damage caused … Continue reading
Indicator of CFS found in gut bacteria
Cornell Chronicle blog post by Krishna Ramanujan, 24 June 2016: Indicator of chronic fatigue syndrome found in gut bacteria Physicians have been mystified by chronic fatigue syndrome, a condition where normal exertion leads to debilitating fatigue that isn’t alleviated by rest. … Continue reading
Research project to evaluate daily activity patterns and heart rate
Newswise Stony Brook University blog post, by …, 23 June 2016: Getting to the Heart of Chronic Fatigue Syndrome Stony Brook researcher receives $1.5 million NIH grant to evaluate daily activity patterns and heart rate of those who suffer from … Continue reading
CFS following low-level radiation exposure
2 articles about the effects of low-level radiation are on the National CFIDS Foundation website at Health of Liquidators (Clean-up Workers) 20 Years after the Chernobyl explosion Chronic Fatigue Syndrome is one of the most important consequences of radioecological disaster resulting … Continue reading
PACE trial cost-effectiveness conclusions faulty
Health rising blog post, by Cort Johnson, 31 May 2016: Another Ball Drops in PACE Controversy: Cost-effectiveness Conclusions Faulty – Plus Update Some past efforts to clear up the controversies around the now notorious PACE trials have requested that the … Continue reading
Circulatory Impairment in ME
ME Advocacy Blog post extract, 14 June 2016: Circulatory Impairment in Myalgic Encephalomyelitis: A Preliminary Thesis, by Maryann Spurgin, Ph.D. Here is my proposal: For many years, I have followed and collated research on Myalgic Encephalomyelitis (ME), in particular on … Continue reading
A new approach for investigating mitochondrial DNA in ME
Research abstract: In mitochondrial research, many investigators have examined the association between mitochondrial DNA (mtDNA) variants in rare as well as common complex diseases. Previous studies at the CHM (NWU) detected three known pathogenic mtDNA variants (m.7497G>A, m.9185T>C and m.10197G>A) at … Continue reading
Complementary & alternative healthcare use by participants in PACE trial
Research abstract: Background: Chronic Fatigue Syndrome (CFS) is characterised by persistent fatigue, disability and a range of other symptoms. The PACE trial was randomised to compare four non-pharmacological treatments for patients with CFS in secondary care clinics. The aims of this sub study … Continue reading
More in-depth mitochondrial testing in ME/CFS proposed
Blog post by Cort Johnson in Health Rising forum, 20 June 2016: Researchers Call For More In-depth Mitochondrial Testing in Chronic Fatigue Syndrome (ME/CFS) More Extensive Mitochondrial Testing Proposed A letter to the editor of the BioMed Central Journal urged … Continue reading
