Category Archives: News

Treatment expectations influence the outcome

Research abstract: OBJECTIVE: To improve the effectiveness of treatment in patients with chronic fatigue syndrome it is worthwhile studying factors influencing outcomes. The aims of this study were (1) to assess the association of expectancy and credibility on treatment outcomes, … Continue reading

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PLOS One journal restates position on data sharing to Prof Coyne

In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting  an … Continue reading

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The misrepresentation of ME in nursing

Article abstract: Re :  Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading

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Problem-Solving Toolkit – to help you access support services

Problem-Solving Toolkit This toolkit from Cerebra aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support … Continue reading

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PACE trial invalidates the use of CBT & GET in ME/CFS

Article abstract: The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both … Continue reading

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A list of ME abnormalities & research citations

Paradigm change blog article, 4 April 2016: ME medical abnormalities More than 500 peer-reviewed articles have been published demonstrating a wide variety of physiological abnormalities in patients with “Chronic Fatigue Syndrome” (a broader condition that currently encompasses patients with the more … Continue reading

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Are ME/CFS and FM immune exhaustion disorders?

Are Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia Immune Exhaustion Disorders?, by Cort Johnson 21 March 2016 When we think of immune problems we often think of the immune system going berserk and attacking healthy cells but another kind of immune … Continue reading

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MRI shows brainstem/midbrain nerve conduction deficit in CFS

Research highlights: • For the first time in CFS, we performed MRI regressions with steady state BP and HR. • Vasomotor centre, midbrain and hypothalamus correlations were abnormal in CFS. • MRI group comparisons between CFS and controls detected no … Continue reading

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MicroRNAs as potential biomarkers in ME/CFS

ME Research UK comments on recent research: MicroRNAs hsa-miR-99b, hsa-miR-330, hsa-miR-126 and hsa-miR-30c: Potential Diagnostic Biomarkers in Natural Killer (NK) Cells of Patients with Chronic Fatigue Syndrome (CFS)/ Myalgic Encephalomyelitis (ME), by RD Petty, NE McCarthy, R Le Dieu, J R … Continue reading

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Natural killer cell & SNP dysfunction in ME/CFS

Research abstract: Aim: The aim of this paper was to determine natural killer (NK) cytotoxic activity and if single nucleotide polymorphisms (SNPs) and genotypes in transient receptor potential (TRP) ion channels and acetylcholine receptors (AChRs) were present in isolated NK … Continue reading

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