Category Archives: News

Managing medicines – carers’ experiences needed

Can you help Carers Trust Wales to develop standardised guidance/training specifically around medicines administration for unpaid carers? Following the success of their booklet A Carers Guide to Medicine management they are asking carers to answer a questionnaire.  There is also the potential … Continue reading

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Chu says suicide in ME/CFS not always linked to depression and anxiety

Excerpt from article by Dr Lily Chu: Another reason I wanted to write about this topic is to encourage professionals and others to think about reasons for suicide beyond depression and anxiety. This is especially important for ME/CFS since many … Continue reading

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ME Awareness blog posts 2016

Laura’s pen blog post, by Laura Chamberlain, 12 May 2016: The M.E. Adventures comic: energy and exertion #MEawareness   [Introduction:  Today is ME awareness day, and to make a change I thought I’d make a comic. When I decided to do this I … Continue reading

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ME Awareness videos

Living with M.E – Short Documentary [a first year University project ] Aarogyamastu – Chronic fatigue Syndrome Awareness Day – 12th May 2016 – ఆరోగ్యమస్తు [Indian video] Action for ME awareness videos: What is ME? [Prof Julia Newton & Dr Gregor … Continue reading

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Factors determining fatigue in CFS

Research abstract: OBJECTIVES: To explore the interrelationship of different dimensions (fatigue, neuroticism, sleep quality, global mental and physical health) in patients with chronic fatigue syndrome (CFS). METHODS Patients meeting the Fukuda criteria of CFS filled out two independent fatigue scales … Continue reading

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10 things people with ME want you to know

Huffington Post UK article, by  Natasha Hinde, 12 May 2016: ME awareness week: 10 important things people with ME want you to know It’s estimated that around 250,000 people in Britain are affected by ME, yet many people are still … Continue reading

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Case study of immune disturbance following biotoxin exposures

Research abstract: BACKGROUND: Patients with multisymptom chronic conditions, such as refractory ulcerative colitis (RUC) and chronic fatigue syndrome (CFS), present diagnostic and management challenges for clinicians, as well as the opportunity to recognize and treat emerging disease entities. In the … Continue reading

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5 things people with ME need doctors to know

Daily life article by Naomi Chainey, 12 May 2016: 5 things people with chronic fatigue syndrome need doctors to understand No one likes having to visit the doctor, but for people with ME/CFS, the experience can be downright traumatic. Today is … Continue reading

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ME Awareness Q&A 10

Q. What is ME? A. ME is so debilitating that most people need help with everyday personal care at some time during their illness. Around 25% are so severely affected they need help daily from carers or care workers. ME … Continue reading

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ME Awareness Q&A 9

ME Awareness day 12 May Q. What is ME? A. ME is much misunderstood and maligned, even by some in the medical profession. Many people with ME are still not believed and given the support and care they need. There is no … Continue reading

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