Category Archives: News
#WAMES_800 – Donations ‘In lieu of gifts’
Give donations ‘In lieu of gifts’ – to aid our #WAMES_8oo Fundraising Journey Why not celebrate your next special occasion by asking your friends and family to lend support to people with ME/CFS? By asking your friends and family … Continue reading
World ME Alliance asks WHO to recognise ME
World ME Alliance calls on WHO Director General to recognise ME alongside Long Covid On Wednesday 12th October Dr Tedros Ghebreyesus, Director General of the World Health Organization, wrote an op-ed in the Guardian. In it, he lays clear … Continue reading
Research: DNA changes during a relapse and recovery cycle in ME/CFS
Dynamic epigenetic changes during a relapse and recovery cycle in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome Epigenetics is the study of how your behaviors and environment can cause changes that affect the way your genes work. Unlike genetic changes, epigenetic … Continue reading
Volunteers invited to join WAMES communications team
Can you help WAMES keep the ME community informed? Are you social media savvy & want pwme to receive the right info at the right time so it makes a real difference to people’s daily lives? Can you help … Continue reading
Research: Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS
Orthostatic Intolerance & neurocognitive impairment overlap in ME/CFS Prof Jason Leonard and US colleagues investigated the relationship between Orthostatic Intolerance and neurocognitive impairment in ME/CFS Orthostatic intolerance (OI) is the development of symptoms when standing upright that are relieved … Continue reading
Research review: Genetics of COVID-19 & ME/CFS
Genetics of COVID-19 and ME/CFS: a systematic review Greek researchers found 71 studies for COVID-19 and 26 studies for ME/CFS that looked at genes. They concluded: “In spite of the fact that COVID-19 and ME/CFS present with some similar … Continue reading
Research: Fitbit trackers & PROMs help monitor ME/CFS activity
Activity monitoring and patient-reported outcome measures in ME/CFS patients A small Norwegian study from the team led by Prof Olav Mella and Dr Oystein Fluge trialled wearable activity trackers and questionnaires to monitor heart rate and activity to aid pacing … Continue reading
Do I need a formal diagnosis of ME/CFS?
Do you have a diagnosis of ME or CFS from the NHS? For decades many people with suspected ME have not been able to find an NHS professional to confirm their diagnosis. As the NHS has had nothing to … Continue reading
Understanding ME (and Long COVID)
Understanding Myalgic Encephalomyelitis – Myalgic Encephalomyelitis and Long COVID have overlapping presentation Dr Sonya Marshall-Gradisnik and Dr Natalie Eaton-Fitch from Griffith University, on the Gold Coast in Australia, say there is a significant overlap in symptoms and possibly the … Continue reading
Respect and include unpaid carers for people with ME/CFS
Prioritising unpaid carers in new approaches to ME/CFS Dr Siobhan O’Dwyer, a Senior Lecturer in Ageing and Family Care at the University of Exeter Medical School, consulted carers of people with ME/CFS and concluded they had a key role … Continue reading
