Category Archives: News

WAMES & the WMEA warn against the Lightning Process

Posted on 08/03/2022 by wames

The Lightning Process: A Position Paper from the World ME Alliance   The World ME Alliance and its members do not endorse the Lightning Process for people with Myalgic Encephalomyelitis (ME), sometimes called Chronic Fatigue Syndrome (CFS).   The World … Continue reading →

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Research: Epstein-Barr Virus in ME/CFS

Posted on 08/01/2022 by wames

Revisiting IgG antibody reactivity to Epstein-Barr Virus in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome and its potential application to disease diagnosis Key research findings: Epstein-Barr virus (EBV) infection is commonly reported at the onset of ME/CFS, but could antibodies against EBV … Continue reading →

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Report says neuro services are at crisis point in Wales

Posted on 07/29/2022 by wames

My Neuro survey Wales report 2022 from the WNA   Whilst we are cognisant that the pandemic has brought with it unprecedented demand on all health and social services, two years hence, the situation for people living with neurological conditions … Continue reading →

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Research: The depressing truth about depression scales for people with chronic invisible illness

Posted on 07/29/2022 by wames

The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner   Research conclusions:  People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading →

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Research: Metabolomic evidence for peroxisomal dysfunction in ME/CFS

Posted on 07/27/2022 by wames

Metabolomic evidence for peroxisomal dysfunction in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome   Research conclusion: Our findings provide the first metabolomic evidence of peroxisomal dysfunction, and are consistent with dysregulation of lipid remodeling and the tricarboxylic acid cycle. These findings, if validated … Continue reading →

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Diagnostic test research: Orthostatic challenge causes the same responses in Long COVID & ME/CFS

Posted on 07/22/2022 by wames

Orthostatic challenge causes distinctive symptomatic, hemodynamic and cognitive responses in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Suzanne D Vernon, Sherlyn Funk, Lucinda Bateman, Gregory J Stoddard, Sarah Hammer, Karen Sullivan, Jennifer Bell, Saeed Abbaszadeh, W Ian Lipkin, Anthony … Continue reading →

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Research review: Molecular hydrogen as a medical gas for the treatment of ME/CFS

Posted on 07/22/2022 by wames

Molecular Hydrogen as a medical gas for the treatment of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: possible efficacy based on a literature review, by Shin-ichi Hirano,  Yusuke Ichikawa,  Bunpei Sato,  Yoshiyasu Takefuji and Fumitake Satoh in Front. Neurol., 11 April 2022 … Continue reading →

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Cwm Taf Morgannwg UHB say they do not offer GET for ME/CFS

Posted on 07/20/2022 by wames

Cwm Taf Morgannwg UHB is “aware of the revised ME/CFS NICE guideline”   WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think … Continue reading →

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Swansea Bay UHB implements ME/CFS NICE guideline

Posted on 07/13/2022 by wames

Swansea Bay UHB implements ME/CFS NICE guideline   WAMES has been asking Health Boards in Wales what plans they have to implement NICE guidelines, whether they intend to consult with patients and how they think their long COVID service might … Continue reading →

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Ensuring the voice of the very severely affected ME/CFS patient is heard in research

Posted on 07/12/2022 by wames

Ensuring the voice of the very severely affected Myalgic Encephalomyelitis/Chronic Fatigue Syndrome patient is heard in research-a research model, by  Helen Baxter   Research article abstract: Most of the research about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has focused on ambulant … Continue reading →

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