Category Archives: News
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, by Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey in Molecular Genetics and Metabolism Vol 132, Supp 1, April 2021, Pages S194-S195 … Continue reading
Recovery from paediatric CFS – definitions are highly variable
Recovery from chronic fatigue syndrome: a systematic review-heterogeneity of definition limits study comparison, by Yasmin Moore, Teona Serafimova, Nina Anderson, Hayley King, Alison Richards, Amberly Brigden, Parisa Sinai, Julian Higgins, Caitlin Ascough, Philippa Clery, Esther M Crawley in Arch Dis … Continue reading
Long COVID & ME/CFS – a systemic review & comparison of clinical presentation & symptomatology
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a systemic review and comparison of clinical presentation and symptomatology, by Timothy L Wong, Danielle J Weitzer in Medicina 2021, 57(5), 418; [doi.org/10.3390/medicina57050418] Review abstract: Background and Objectives: Long COVID … Continue reading
Development of an inertial measurement-based assessment of disease severity in CFS
Development of an inertial measurement-based assessment of disease severity in Chronic Fatigue Syndrome, by Turner Palombo, Suzanne Vernon, Shad Roundy in Digital Commons (Utah Space Grant Consortium grant) 2020 Paper 11. Published May 2021 Research abstract: While myalgic encephalomyelitis/chronic … Continue reading
Case report: angina simultaneously diagnosed with the recurrence of ME/CFS
Angina simultaneously diagnosed with the recurrence of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, by Koki Li, Yuki Otsuka, Yasuhiro Nakano, Daisuke Omura, Kou Hasegawa, Mikako Obika, Keigo Ueda, Hitomi Kataoka and Fumio Otsuka in Diagnostics Vol 11 no. 3 [10.3390/diagnostics11030460] 6 … Continue reading
ME Awareness raising in Wales 2021
ME Awareness in Wales 2021 Awareness raising can happen at any time, by anyone, but traditionally the ME community individually and in groups have focussed efforts around 2 dates in the year: International ME Awareness Day – 12 May … Continue reading
‘Having severe ME/CFS is so close to being dead’: extremely severe ME/CFS – a personal account’
Extremely severe ME/CFS — A personal account, by Whitney Dafoe in Healthcare Vol 9, #5, p 504, April 27, 2021 [doi.org/10.3390/healthcare9050504] Article abstract: A personal account from an Extremely Severe Bedridden ME/CFS patient about the experience of living with extremely … Continue reading
The role of prevention in reducing the economic impact of ME/CFS in Europe: a report from EUROMENE
The Role of Prevention in Reducing the Economic Impact of ME/CFS in Europe: A Report from the Socioeconomics Working Group of the European Network on ME/CFS (EUROMENE) by Derek F H Pheby, Diana Araja, Uldis Berkis, Elenka Brenna, John Cullinan, … Continue reading
Pathophysiology of skeletal muscle disturbances in ME/CFS
Pathophysiology of skeletal muscle disturbances in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS), by Klaus J Wirth & Carmen Scheibenbogen in Journal of Translational Medicine vol 19, no. 162 (2021) [doi.org/10.1186/s12967-021-02833-2] Review abstract: Chronic Fatigue Syndrome or Myalgic Encephaloymelitis (ME/CFS) … Continue reading
I already have a job: Energy Limiting Chronic Illness (ELCI), social Inclusion, employment & Social Security
Centre for Welfare Reform report: I already have a job: Energy Limiting Chronic Illness (ELCI), Social Inclusion, Employment and Social Security. By Catherine Hale, Stef Benstead, Dr Kate Hardy and Dr Jo Ingold, April 2021 This report presents the … Continue reading
