Category Archives: News
DecodeME is recruiting more study participants
Dear DecodeME Friend, We have been blown away by the response we have had since we announced funding for the study. Over 25,000 people have signed up to receive updates, with nearly 20,000 people in the UK indicating they are … Continue reading
Activity measurement in pediatric CFS
Activity measurement in pediatric chronic fatigue syndrome, by Bernardo Loiacono, Madison Sunnquist, Laura Nicholson, Leonard A Jason in Chronic Illness, August 17, 2020 [doi.org/10.1177/1742395320949613] Research abstract: Objectives: Individuals with myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) experience debilitating … Continue reading
How ME/CFS progresses: the natural history of ME/CFS
How Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) progresses: the natural history of ME/CFS, by Luis Nacul, Shennae O’Boyle, Luigi Palla, Flavio E Nacul, Kathleen Mudie, Caroline C Kingdon, Jacqueline M Cliff, Taane G Clark, Hazel M Dockrell and Eliana M Lacerda … Continue reading
Hemodynamics during the 10-minute NASA Lean Test: evidence of circulatory decompensation in a subset of ME/CFS patients
Hemodynamics during the 10-minute NASA Lean Test: evidence of circulatory decompensation in a subset of ME/CFS patients by Jihyun Lee, Suzanne D Vernon, Patricia Jeys, Weam Ali, Andrea Campos, Derya Unutmaz, Brayden Yellman, Lucinda Bateman in J Transl Med. 2020 … Continue reading
ME/CFS in Europe – EMEC factsheets
European ME Coalition fact sheets The European ME Coalition (EMEC) presents three new fact sheets about Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). The documents briefly summarize key facts about the economic and societal impact of ME/CFS in Europe and the … Continue reading
Validation of the severity of ME/CFS by other measures than history
Validation of the severity of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome by other measures than history: activity bracelet, Cardiopulmonary Exercise Testing and a validated activity, Questionnaire: SF-36, by by C (Linda) M C van Campen, Peter C Rowe and Frans C Visser in … Continue reading
Join the WAMES team – treasurer & other volunteers needed!
Can you help WAMES continue in our mission? Our Vision is for a Wales where adults and children with ME and CFS and their carers are taken seriously and treated with respect, where diagnosis, treatment and services are accessible … Continue reading
Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners
Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners, by Hope Foley, Amie Steel, Jon Adams in Complementary Therapies in Medicine Vol 52, August 2020, 102518 [doi.org/10.1016/j.ctim.2020.102518] Highlights Chronic illness care in complementary medicine … Continue reading
A systematic review of mitochondrial abnormalities in ME/CFS/SEID
A systematic review of mitochondrial abnormalities in myalgic encephalomyelitis/chronic fatigue syndrome/systemic exertion intolerance disease, by Sean Holden, Rebekah Maksoud, Natalie Eaton-Fitch, Hélène Cabanas, Donald Staines & Sonya Marshall-Gradisnik in Journal of Translational Medicine vol 18, no: 290 (2020)[doi.org/10.1186/s12967-020-02452-3] Review … Continue reading
Clinically accessible tools for documenting the impact of Orthostatic Intolerance on symptoms & function in ME/CFS
Clinically accessible tools for documenting the impact of Orthostatic Intolerance on symptoms and function in ME/CFS, by Jihyun Lee, Pelle Wall, Chris Kimler, Lucinda Bateman, Suzanne D Vernon in Work vol. 66, no. 2, pp. 257-263, 2020 [doi: 10.3233/WOR-203169] Research … Continue reading
