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Latest News
- Identification of actin network proteins, talin-1 & filamin-A, in circulating extracellular vesicles as blood biomarkers for human ME/CFS
- Is CFS related to a crash of the brain attention mechanism – hypervigilance correlates with fatigue & pain scales among individuals with CFS
- ME/CFS NICE guideline publication to be delayed
- The effect of curcumin in patients with CFS/ME
- Prevalence & treatment of CFS/ME & co-morbid severe health anxiety
Archives
Tag Archives: paediatric CFS
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019 WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading
Posted in News
Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, SMILE trial, Virology blog
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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
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Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review
Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading
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Tagged adolescents, children, Jane Murphy, paediatric CFS, Sarah S Collard, teenagers
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Academics object to the continued publication of the Lightning Process for children study
Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019 I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading
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Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, Virology blog
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Epidemiology of paediatric CFS in Australia
Epidemiology of paediatric chronic fatigue syndrome in Australia, by Sarah Knight, Shane Elders, Jill Rodda, Adrienne Harvey, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Susan Towns, Kasia Kozlowska, Donald N Payne, Sonya Marshall-Gradisnik, Adam Scheinberg in Archives of Disease … Continue reading
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Tagged Adam Schienberg, Adrienne R Harvey, Australia, children, Colette Revely, Donald N Payne, Dr Sarah Knight, Dr Sonya Marshall-Gradisnik, epidemiology, incidence, Jill Rodda, Kasia Kozlowska, Katherine S Rowe, Lionel Lubitz, paediatric CFS, Sabine Hennel, Shane Elders, Susan Towns
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