Tag Archives: paediatric CFS

CFS/ME in children aged 5 to 11 years: a qualitative study

Chronic fatigue syndrome/myalgic encephalomyelitis in children aged 5 to 11 years: a qualitative study, by Amberly Brigden, Alison Shaw, Emma Anderson, Esther Crawley in Clinical Child Psychology and Psychiatry Oct 2020 [doi:10.1177/1359104520964528]   Research abstract: Treatments for paediatric chronic fatigue … Continue reading

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CFS in children population: current knowledge summary

Chronic Fatigue Syndrome in children population – current knowledge summary, by Monika Prylinska, Natalia Skierkowska, Weronika Topka, Małgorzata Kwiatkowska in Journal of Education, Health and Sport Vol 10, #9, 635-643, Sep 2020   Review abstract: Chronic Fatigue Syndrome/Myalgic Encephalomyelits (CFS/ME) … Continue reading

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A qualitative exploration of treatment preference in paediatric randomised control trials

A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading

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Interventions to treat pain in paediatric CFS/ME: a systematic review

Interventions to treat pain in paediatric CFS/ME: a systematic review, by Caitlin Ascough, Hayley Kin, Teona Serafimova, Lucy Beasant, Sophie Jackson, Luke Baldock, Anthony Edward Pickering, Jonathan Brooks, Esther Crawley in BMJ Paediatrics Open Vol 4, #1, March 2020     … Continue reading

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Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric CFS/ME: prioritisation through card ranking

Development of a conceptual framework to underpin a health-related quality of life outcome measure in paediatric chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): prioritisation through card ranking, by Roxanne M. Parslow, Nina Anderson, Danielle Byrne, Kirstie L Haywood, Alison Shaw & Esther … Continue reading

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Paediatric CFS patients’ & parents’ perceptions of recovery

Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019   Research abstract: What is known about the … Continue reading

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Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)

Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019   WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading

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Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading

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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading

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Academics object to the continued publication of the Lightning Process for children study

Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019   I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading

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