-
Latest News
- Achieving symptom relief in patients with ME by targeting the neuro-immune interface & inducing disease tolerance
- Cardiopulmonary responses to exercise in an individual with ME/CFS during long-term treatment with intravenous saline: a case study
- A demon on my life – a play about ME
- Dental considerations for a patient with ME/CFS – a case study
- “Long Haulers” to the rescue? Barrage of Covid-19 media stories, studies & registries spells hope for ME/CFS
Archives
Tag Archives: paediatric CFS
A qualitative exploration of treatment preference in paediatric randomised control trials
A qualitative exploration of treatment preference in paediatric randomised controlled trials, by Lucy Beasant PhD thesis, University of Bristol, [Bristol Medical School (PHS), Bristol Population Health Science Institute] November 28, 2019. Supervisors: Esther M Crawley, Nicola J Mills & Bridget … Continue reading
Posted in News
Tagged children, Lucy Beasant, paediatric CFS, Randomised Controlled Trials, RCT, treatment preference, young people
Comments Off on A qualitative exploration of treatment preference in paediatric randomised control trials
Interventions to treat pain in paediatric CFS/ME: a systematic review
Interventions to treat pain in paediatric CFS/ME: a systematic review, by Caitlin Ascough, Hayley Kin, Teona Serafimova, Lucy Beasant, Sophie Jackson, Luke Baldock, Anthony Edward Pickering, Jonathan Brooks, Esther Crawley in BMJ Paediatrics Open Vol 4, #1, March 2020 … Continue reading
Posted in News
Tagged Anthony Edward Pickering, Caitlin Ascough, children, chronic pain, Dr Esther Crawley, Hayley Kin, Jonathan Brooks, Lucy Beasant, Luke Baldock, paediatric CFS, Sophie Jackson, Teona Serafimova
Comments Off on Interventions to treat pain in paediatric CFS/ME: a systematic review
Paediatric CFS patients’ & parents’ perceptions of recovery
Paediatric chronic fatigue syndrome patients’ and parents’ perceptions of recovery, by Matthew Robert Harland, Roxanne Morin Parslow, Nina Anderson, Danielle Byrne, Esther Crawley in BMJ Paediatrics Open Vol 3, #1, Dec 2, 2019 Research abstract: What is known about the … Continue reading
Posted in News
Tagged adolescents, children, Danielle Byrne, Dr Esther Crawley, Matthew Robert Harland, Nina Anderson, paediatric CFS, recovery, Roxanne Morin Parslow, teenagers
Comments Off on Paediatric CFS patients’ & parents’ perceptions of recovery
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2), by by David Tuller, DrPH in Virology blog, 22 November 2019 WAMES has joined 55 clinicians & scientists and 63 other organisations in signing this protest … Continue reading
Posted in News
Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, SMILE trial, Virology blog
Comments Off on Trial By Error: Open letter to Dr Godlee about BMJ’s ethically bankrupt actions (2)
Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME): cognitive interviews with children, by Roxanne M. Parslow, Alison Shaw, Kirstie L Haywood, Esther Crawley in Journal of Patient-Reported Outcomes Vol 3, p 67 [First … Continue reading
Posted in News
Tagged Alison Shaw, children, cognitive interviews, Dr Esther Crawley, Kirstie Haywood, paediatric CFS, Patient reported outcome measure, PROMS, Roxanne Morin Parslow, Three step test interview, TSTI
Comments Off on Developing & pretesting a new patient reported outcome measure for paediatric CFS/ME
Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review
Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: a scoping review, by Sarah S Collard, Jane Murphy in Journal of Child Health Care, 4 Aug 2019 [https://doi.org/10.1177/1367493519864747] Review abstract: Chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) negatively impacts the quality … Continue reading
Posted in News
Tagged adolescents, children, Jane Murphy, paediatric CFS, Sarah S Collard, teenagers
Comments Off on Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review
Academics object to the continued publication of the Lightning Process for children study
Trial By Error: an open letter to Dr Godlee about BMJ’s ethically bankrupt actions, by David Tuller in Virology blog, 28 August 2019 I have sent the following letter to Dr Fiona Godlee, editorial director of BMJ, about Archives … Continue reading
Posted in News
Tagged BMJ, British medical Journal, children, David Tuller, Dr Esther Crawley, Lightning process, paediatric CFS, Virology blog
Comments Off on Academics object to the continued publication of the Lightning Process for children study
Epidemiology of paediatric CFS in Australia
Epidemiology of paediatric chronic fatigue syndrome in Australia, by Sarah Knight, Shane Elders, Jill Rodda, Adrienne Harvey, Lionel Lubitz, Kathy Rowe, Colette Reveley, Sabine Hennel, Susan Towns, Kasia Kozlowska, Donald N Payne, Sonya Marshall-Gradisnik, Adam Scheinberg in Archives of Disease … Continue reading
Posted in News
Tagged Adam Schienberg, Adrienne R Harvey, Australia, children, Colette Revely, Donald N Payne, Dr Sarah Knight, Dr Sonya Marshall-Gradisnik, epidemiology, incidence, Jill Rodda, Kasia Kozlowska, Katherine S Rowe, Lionel Lubitz, paediatric CFS, Sabine Hennel, Shane Elders, Susan Towns
Comments Off on Epidemiology of paediatric CFS in Australia
