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Here are links to charities’ responses to the 4 questions on NICE’s proposal not to review the Guidelines for CFS/ME
25% ME Group
Action for ME
Forward ME
Hope 4 ME & Fibro Northern Ireland
Invest in ME
Local ME
#ME Action
ME Association
Suffolk & Norfolk ME Groups
Tymes Trust
WAMES
Letters to Sir Andrew Dillon , Chief Executive, NICE
ME Association Reply
Stonebird
In the media:
Vada magazine post by Adam Lowe, 26 July 2017: Charities reject NICE ‘no update’ proposal for ME/CFS guideline
Charities suggest NICE guidelines for ME/CFS not fit for purpose and may be a breach of UN disability rights.
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