Tag Archives: PACE trial
Studies on CBT & GET for ME/CFS are misleading, says Swedish prof
Article abstract: There have been a number of studies on Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) for ME/CFS based on a treatment model where the disease is perpetuated by cognitive processes. Although the studies are flawed and … Continue reading
PACE-gate: when clinical trial evidence meets open data access
Article abstract: Science is not always plain sailing and sometimes the voyage is across an angry sea. A recent clinical trial of treatments for chronic fatigue syndrome (the PACE trial) has whipped up a storm of controversy. Patients claim the … Continue reading
Prof Peter White says: If my team’s research on ME is rejected, the patients will suffer
Guardian opinion piece, by Peter White, 20 September 2016: ‘If my team’s research on ME is rejected, the patients will suffer’ Sufferers of chronic fatigue syndrome have been neglected too long. But our Pace trials show the right talking and … Continue reading
PACE trial shows patients need to scrutinise studies about their health,
BMJ blog post by Simon McGrath, 22 Sep 2016: PACE trial shows why medicine needs patients to scrutinise studies about their health Like all patients, what I want most from clinical research is treatments that work, not ones that merely … Continue reading
PACE trial results were grossly exaggerated
Occupy ME blog post, by Jennie Spotila, 21 Sep 2016: PACE: Grossly Exaggerated On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of … Continue reading
Lancet invites letter re PACE, then decides not to publish
Virology blog post, by Vincent Racaniello, 29 August 2016: Once Again, Lancet Stumbles on PACE Last February, Virology Blog posted an open letter to The Lancet and its editor, Dr. Richard Horton, describing the indefensible flaws of the PACE trial … Continue reading
BMJ reports tribunal orders PACE trial release of data
British Medical Journal news report, by Ingrid Torjesen, 22 August 2016: Tribunal orders university to release data from PACE chronic fatigue study A tribunal has ruled that Queen Mary University of London must release data from a trial looking at treatment … Continue reading
More PACE trial tribunal comments
PACE trial ruling: Respondent Alem Mathees main response The essential daily briefing, 19 August 2016: Chronic Fatigue Syndrome sufferers have just had a small victory Health Rising discussion, 17 August 2016: The PACE Trial’s Big Stumble: UK Tribunal Orders Release of PACE … Continue reading
Reasons given for not releasing PACE trial fitness data
PACE Trial: Reasons Queen Mary University of London gave for not releasing fitness data Tom Kindlon reports that retired mathematics teacher, Graham McPhee, requested the numerical values (for the groups, not individuals) used to create this graph of the fitness … Continue reading
Rehmeyer makes statisticians’ ‘jaws drop’ over PACE
MEAction blog post by Alex Anderssen, 8 August 2016: Rehmeyer makes statisticians’ ‘jaws drop’ over PACE Science writer Julie Rehmeyer presented a critique of the PACE trial to North America’s largest gathering of statisticians in Chicago earlier this week. Her talk was titled, “Bad … Continue reading
