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PEM: Running out of battery & feeling intensely unwell: a carer’s perspective
PEM: Running out of battery & feeling intensely unwell: a carer’s perspective I guess you’ve probably heard of Myalgic Encephalomyelitis – by its abbreviation ‘ME’. Maybe you’ve got an idea that it’s about being tired all the time. That … Continue reading
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Tagged #LearnFromME, #WorldMEday, carer, DecodeME study, PEM, PESE, Post Exertional Symptom Exacerbation, Post-exertional malaise, symptoms, World ME Day
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Management: Lessons from ME/CFS for long COVID: Heart rate monitoring to manage PESE (PEM)
Lessons from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome for Long COVID: Part 4: Heart Rate Monitoring to Manage Postexertional Symptom Exacerbation, by Todd E Davenport, Staci R Stevens, Jared Stevens, Christopher R Snell, J Mark Van Ness in JOSPT February 23, 2022 [doi.org/10.2519/jospt.blog.20220223] … Continue reading
Research: A comprehensive examination of severely ill ME/CFS patients
A comprehensive examination of severely ill ME/CFS patients, by Chia-Jung Chang, Li-Yuan Hung, Andreas M. Kogelnik, David Kaufman, Raeka S Aiyar, Angela M Chu, Julie Wilhelmy, Peng Li, Linda Tannenbaum, Wenzhong Xiao, Ronald W Davis in Healthcare Vol 9, #10, p … Continue reading
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Tagged Andreas Kogelnik, Angela M Chu, Chia-Jung Chang, David Kaufman, Julie Wilhelmy, Li-Yuan Hung, Linda Tannenbaum, long Covid, Peng Li, Prof Ronald W Davis, Quality of life, Raeka S Aiyar, symptoms, very severe ME/CFS, viral infections, Wenzhong Xiao
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Warning signals of Post-Exertional Malaise in ME/CFS
Warning Signals of Post-Exertional Malaise in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: A retrospective analysis of 197 patients, by Alaa Ghali, Carole Lacout, Maria Ghali, Aline Gury, Estelle Delattre, Christian Lavigne and Geoffrey Urbanski in J. Clin. Med. 2021, 10(11), 2517; … Continue reading
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Tagged Alaa Ghali, Aline Gury, Carole Lacout, Christian Lavigne, Estelle Delattre, Geoffrey Urbanski, Maria Ghali, PEM, Post-exertional malaise, prevention, symptoms, warning signal
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COVID-19 symptoms over time: comparing long-haulers to ME/CFS
COVID-19 symptoms over time: comparing long-haulers to ME/CFS, by Leonard A Jason, Mohammed F Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson in Fatigue: Biomedicine, Health & Behavior 05 May 2021 [doi.org/10.1080/21641846.2021.1922140] Research Abstract: Introduction: Our objective was … Continue reading
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Tagged Chelsea Torres, Cort Johnson, Joseph Cotler, Karl Conroy, long Covid, long haulers, Mady Johnso, Mohammed F Islam, PEM, Post-exertional malaise, Prof Leonard Jason, symptoms
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Long COVID & ME/CFS – a systemic review & comparison of clinical presentation & symptomatology
Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) – a systemic review and comparison of clinical presentation and symptomatology, by Timothy L Wong, Danielle J Weitzer in Medicina 2021, 57(5), 418; [doi.org/10.3390/medicina57050418] Review abstract: Background and Objectives: Long COVID … Continue reading
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Tagged Danielle J Weitzer, long Covid, symptoms, Timothy L Wong
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ME/CFS symptoms – videos of patients’ experiences
Dialogues for ME/CFS videos – Symptoms The latest videos in the ‘Dialogues for a neglected illness’ series gives patients’ accounts of a variety of key symptoms experienced in ME/CFS. Reduced Function – 20 mins How does the disease … Continue reading
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Tagged Dialogues ME-CFS, patient experiences, symptoms, videos
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4 key characteristics of ME identified in 3 countries
Research abstract: The present study attempted to identify critical symptom domains of individuals with Myalgic Encephalomyelitis (ME) and chronic fatigue syndrome (CFS). Using patient and control samples collected in the United States, Great Britain, and Norway, exploratory factor analysis (EFA) was … Continue reading
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Tagged case definitions, DePaul Symptom Questionnaire, Dr Leonard Jason, Prof Julia Newton, symptoms
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Accurate diagnosis of ME and CFS based on objective test methods for characteristic symptoms
Article abstract: Although myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are considered to be synonymous, the definitional criteria for ME and CFS define two distinct, partially overlapping, clinical entities. ME, whether defined by the original criteria or by the … Continue reading
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Tagged cardiopulmonary exercise tests, cognitive tests, diagnosis, Frank NM Twisk, illness impact, objective measures, symptoms
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