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Operationalizing substantial reduction in functioning among young adults with CFS
Research abstract: Operationalizing Substantial Reduction in Functioning Among Young Adults with Chronic Fatigue Syndrome, by Kristen D. Gleason, Jamie Stoothoff, Damani McClellan, Sttephanie McManimen, Taylor Thorpe, Ben Z. Katz, Leonard A. Jason in International Journal of Behavioral Medicine 2018 pp1-8 [Published online 5 June 2018] Purpose: Chronic fatigue syndrome and myalgic … Continue reading
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Tagged Ben Z Katz, case definitions, Damani McClellan, functional ability, Jamie Stoothoff, Kristen Gleason, Prof Leonard Jason, SF-36, Short form Health Survey, Stephanie L McManimen, Taylor Thorpe, young people
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Cash 4 U grants for young volunteers’ projects Gwent 2018
Cash 4 U – GwirVol Youth Led Grant- Volunteering opportunities projects for young people Do you who have an exciting project idea but need funds to get it off the ground? Your proposed project should: Involve at least three Volunteers (aged 14-25) … Continue reading
Mindfulness course for young people, 14 Jun -16 Aug, Bangor
.b Mindfulness course for young people in Bangor Bangor: Thursdays 4 – 5pm, 14 June — 16 August 2018 .b (pronounced dot-be) is a fun, engaging and useful mindfulness course for young people. It is taught with striking visuals, film clips … Continue reading
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Tagged Bangor, mindfulness, Ynys Môn and Gwynedd Mind, young people
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‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME
Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading
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Tagged adolescents, Anne Marit Mengshoel, Berit Widerøe Njølstad, illness experience, NorCAPITAL project, teenagers, Unni Sveen, young people
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Measuring school functioning in students with CFS
Review abstract: Measuring school functioning in students with Chronic Fatigue Syndrome: a systematic review, by Michelle Tollit, Jennifer Politis, Sarah Knight in J Sch Health. 2018 Jan; 88(1):74-89. [published online 17 Dec 2017] BACKGROUND: It is often surmised that school functioning … Continue reading
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Tagged adolescents, children, Dr Jennifer Politis, Dr Michelle Tollit, Dr Sarah Knight, education, school absence, teenagers, young people
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Guidelines for children with ME now available to download
Myalgic Encephalomyelitis Chronic Fatigue Syndrome Diagnosis and Management in Young People: a primer, 2017 Edition This primer was compiled and published in June 2017 by the International Writing Group for Pediatric ME/CFS. It was originally published as a review article based in Frontiers in … Continue reading
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Tagged adolescents, Alan Gurwitt, children, clinical guidelines, Dr Kenneth J Friedman, Dr Nigel Speight, Dr Peter Rowe, Dr Rosamund Vallings, Julian M Stewart, Katherine S Rowe, Malcolm S Schwartz, Marvin S Medow, ME/CFS Primer for clinical practitioners, Rosemary A. Underhill, teenagers, young people
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Transforming growth factor beta (TGF-β) in adolescent CFS
Research abstract: Transforming growth factor beta (TGF-β) in adolescent chronic fatigue syndrome by VB Wyller, CB Nguyen, JA Ludviksen, TE Mollnes in J Transl Med. 2017 Dec 4;15(1):245 BACKGROUND: Chronic fatigue syndrome (CFS) is a prevalent and disabling condition among adolescents. The … Continue reading
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Tagged adolescents, CB Nguyen, cytokine levels, JA Ludviksen, NorCAPITAL project, TE Mollnes, teenagers, TGF-β, Transforming Growth Factor-beta, Vegard Bruun Wyller, young people
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30% school absence due to ME in Norway
Phoenix rising forum post, 6 Feb 2017: Norwegian prime minister concerned about young ME-patients. Norwegian media have reported several places today the prime minister’s concern for young ME patients. Last year she asked Ministry of Health and Care Services to … Continue reading
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Tagged adolescents, c, children, education, Erna Solberg, Noway, school absence, young people
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Narratives of young people living with a diagnosis of CFS/ME
Thesis abstract: CFS/ME (Chronic Fatigue Syndrome/Myalgic Encephalomyelitis) is a distressing and potentially debilitating condition. It can also be understood as a contested condition, surrounded by controversy about its nature, causes and treatment. Previous research indicates that those affected experience this climate of contestation as a … Continue reading
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Tagged adolescents, children, thesis, Wendy Solomons, young people
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A qualitative study of depression in young people with CFS/ME
Research abstract: Background: Paediatric chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) has a prevalence of 0.4–2.4% and is defined as ‘generalised disabling fatigue persisting after routine tests and investigations have failed to identify an obvious underlying cause’. One-third of young people with … Continue reading
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Tagged adolescents, Amberly LC Brigden, Anna K Taylor, CBT, children, cognitive behavioural therapy, depression, Dr Esther Crawley, low mood, Maria E Loades, paediatric ME, Simon M Collin, teenagers, young people
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