Author Archives: wames

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman Book Description: From a darkened world, bound by four walls, a young woman called Jessica tells the tale of her battle against the M.E Monster. The severest form of a neuro … Continue reading

Posted in News | Tagged , , | Comments Off on ‘A Girl Behind Dark Glasses’ book by Jessica Taylor-Bearman

Intracranial compliance is associated with symptoms of orthostatic intolerance in CFS

Research abstract: Intracranial compliance is associated with symptoms of orthostatic intolerance in chronic fatigue syndrome, by Andreas Finkelmeyer, Jiabao He, Laura Maclachlan, Andrew M Blamire, Julia L Newton in PLoS One. 2018 Jul 3;13(7):e0200068 Symptoms of orthostatic intolerance (OI) are … Continue reading

Posted in News | Tagged , , , , , , , , , | Comments Off on Intracranial compliance is associated with symptoms of orthostatic intolerance in CFS

Meta-analysis investigating post-exertional malaise between patients & controls

Review abstract: Meta-analysis investigating post-exertional malaise between patients and controls by Abigail Brown and Leonard Jason in J Health Psychol. 2018 Jul [First published 5 July 2018] Post-exertional malaise is either required or included in many previously proposed case definitions of myalgic … Continue reading

Posted in News | Tagged , , | Comments Off on Meta-analysis investigating post-exertional malaise between patients & controls

Dr Ron Davis’s big immune study is looking at HLA genes – here’s why

ME/CFS Research review blog post, by Simon McGrath, 28 June 2018: Dr Ron Davis’s big immune study is looking at HLA genes – here’s why Dr Ron Davis has won a large NIH (US National Institutes of Health) grant for an immunology … Continue reading

Posted in News | Tagged , , , , | Comments Off on Dr Ron Davis’s big immune study is looking at HLA genes – here’s why

Status of research, treatment & perception of Myalgic Encephalomyelitis 2018

Invest in ME Research UK blog post, June 2018: Status of Research, Treatment and Perception of Myalgic Encephalomyelitis 2018 Accountability and Action “None of the recommendations from the CMO Working Group report have been fulfilled – a testament to the … Continue reading

Posted in News | Tagged , | Comments Off on Status of research, treatment & perception of Myalgic Encephalomyelitis 2018

CRISPR: Could a breakthrough in gene editing technology help ME/CFS & FM?

Health rising blog post, by Stephen La Corte, 8 June 2018: CRISPR: Could a Breakthrough in Gene Editing Technology Help ME/CFS and Fibromyalgia? (Thanks to Stephen for providing his stimulating blog on new advances in gene editing technology and the … Continue reading

Posted in News | Tagged , , | Comments Off on CRISPR: Could a breakthrough in gene editing technology help ME/CFS & FM?

#TimeForUnrestWales – the Cabinet Secretary for Health’s plans for ME & CFS

#TimeForUnrestWales  the Cabinet Secretary for Health’s plans for ME & CFS In early May WAMES wrote to the Cabinet Secretary for Health, Vaughan Gething, expressing concern for the slow progress in implementing the Task & Finish Group Report’s Recommendations and … Continue reading

Posted in News | Tagged , , , , , , | Comments Off on #TimeForUnrestWales – the Cabinet Secretary for Health’s plans for ME & CFS

Westminster Hall debate could be a ‘turning of the tide’ for ME

#MEAction blog post, 21 June 2018: Westminster Hall debate could be a ‘turning of the tide’ for ME Today was a turning of the tide for Myalgic Encephalomyelitis (ME) as 26 MPs attended a Westminster Hall debate on treatment and research for … Continue reading

Posted in News | Tagged , , , , | 2 Comments

Circadian rhythm abnormalities & autonomic dysfunction in patients with CFS/ME

Circadian rhythm abnormalities and autonomic dysfunction in patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis, by Trinitat Cambras, Jesús Castro-Marrero, Maria Cleofé Zaragoza, Antoni Díez-Noguera, José Alegre in PLOS one 13:6[Published: June 6, 2018] Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) patients frequently show autonomic symptoms which may … Continue reading

Posted in News | Tagged , , , , , , , | Comments Off on Circadian rhythm abnormalities & autonomic dysfunction in patients with CFS/ME

Vote for Unrest!

Independent Lens Audience Award Unrest is in the running for the 2017-18 Independent Lens Audience Award in the States!   Voting for the Audience Award opens today Monday, June 18th and ends on Friday, June, 29th, 2018 at 1 PM … Continue reading

Posted in News | Tagged | Comments Off on Vote for Unrest!