Author Archives: wames
#TimeForUnrestWales – Join the campaign!
#TimeForUnrestWales a campaign for health equality and the recognition of the neurological condition of ME Much work is needed to put ME & CFS on an equal basis with other neurological conditions! WAMES is asking the Cabinet Secretary for Health: … Continue reading
#TimeForUnrestWales – the struggle to get an accurate diagnosis
#TimeForUnrestWales a campaign for recognition of ME and health equality There is a Health and Social Care crisis for people with ME in Wales, starting with the struggle patients have to find an accurate diagnosis from doctors who understand ME. … Continue reading
#TimeForUnrestWales – May 12th International ME Awareness Day 2018
It is #TimeForUnrestWales Over the last few years a number of global campaigns have been launched to raise awareness of ME. Here in Wales they have struck a chord and we have been adding our voice to those around the … Continue reading
Toxic brains, frozen spines & the Perrin Point: Ray Perrin, ME/CFS & FM
Health rising blog post, by Cort Johnson, 25 March 2018: Toxic brains, frozen spines and the Perrin Point: Ray Perrin, ME/CFS and Fibromyalgia This is the second of three blogs examining the possibility that upper body/head issues play a role in … Continue reading
Integration of DNA methylation & health scores identifies subtypes in ME/CFS
Research abstract: Integration of DNA methylation & health scores identifies subtypes in myalgic encephalomyelitis/chronic fatigue syndrome, by Wilfred C de Vega, Lauren Erdman, Suzanne D Vernon, Anna Goldenberg & Patrick O McGowan in Epigenomics. 2018 Apr 25. doi: 10.2217/epi-2017-0150. [Epub … Continue reading
CFS – it’s worse than Multiple Sclerosis
Health rising blog post, by Cort Johnson, 16 April 2018: Chronic Fatigue Syndrome – It’s Worse than Multiple Sclerosis – and Fibromyalgia is No Walk in the Park Either Multiple sclerosis (MS) is a dreaded disease. About ten years into … Continue reading
Bedbound Cardiff woman’s heartbreak after illness
Mirror online news post, by Mark Smith & Jamie Bullen, 26 April 2018: Bedbound woman’s heartbreak after illness ‘ruins’ relationship with daughter ‘who only knows her as sick mum’ Carol Davis said her ME has “destroyed my life” after leaving … Continue reading
‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with CFS/ME
Research abstract: ‘It’s like being a slave to your own body in a way’: a qualitative study of adolescents with chronic fatigue syndrome, by Berit Widerøe Njølstad, Anne Marit Mengshoel & Unni Sveen in Scand J Occup Ther. 2018 Apr 1:1-10. … Continue reading
