Author Archives: wames

Prof Jason invites you to take part in research into abnormal response to exertion

DePaul University, Chicago questionnaire, by Prof Leonard Jason: Abnormal Response to Physical and/or Cognitive Exertion in ME and CFS We are conducting a research study because we are trying to learn more about the experience of abnormal responses to physical and/or … Continue reading

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Lower regulatory frequency for postural control in patients with FM & CFS

Research article abstract: Lower regulatory frequency for postural control in patients with fibromyalgia and chronic fatigue syndrome by Omid Rasouli, Ottar Vasseljen, Egil A. Fors, Håvard W. Lorås, Ann-Katrin Stensdotter in PLOS One [Published: April 4, 2018] As many similar symptoms are reported in fibromyalgia … Continue reading

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Disequilibrium & orthostatic intolerance in patients with ME (CFS)

Research abstract: The etiologic relation between disequilibrium and orthostatic intolerance in patients with myalgic encephalomyelitis (chronic fatigue syndrome) by K Miwa, Y Inoue in J Cardiol. 2018 Mar 24. pii: S0914-5087(18)30058-3 [Epub ahead of print] Highlights: Disequilibrium should be recognized as the important cause for … Continue reading

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Residential care savings limit increases in Wales

Welsh Government news post, 9 April 2018: Residential care savings limit increases in Wales From today, people in Wales are able to keep up to £40,000 of their money before they need to self-fund the full cost of their residential … Continue reading

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Did a Multiple Sclerosis study give us clues about ME/CFS & FM?

Simmaron Research blog post, by Cort Johnson, 19 March 2018: Did a Multiple Sclerosis study give us clues about ME/CFS and Fibromyalgia? Why should a blog focused on chronic fatigue syndrome (ME/CFS) and fibromyalgia (FM) be interested in multiple sclerosis? … Continue reading

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Much can be done to ease ‘CFS’ symptoms – US 2018 Clinician Summit reports

Reports from the 2 day ME/CFS Clinician Summit 2018 held in Salt Lake City Utah. 1. Bateman Horne Center blog post, by Stephanie Griffin, 12 March 2018: A consensus-driven ME/CFS clinician coalition takes shape The primary outcomes are two-fold. First, an evidence-based … Continue reading

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SEID/CFS is common in sleep centre patients with hypersomnolence

Research abstract: Systemic exertion intolerance disease/chronic fatigue syndrome is common in sleep centre patients with hypersomnolence: A retrospective pilot study, by Caroline Maness, Prabhjyot Saini, Donald L. Bliwise, Victoria Olvera, David B. Rye, Lynn M. Trotti in J Sleep Res. 2018 Apr … Continue reading

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Circulating extracellular vesicles as potential biomarkers in CFS/ME

Research abstract: Circulating extracellular vesicles as potential biomarkers in chronic fatigue syndrome/ myalgic encephalomyelitis: an exploratory pilot study, by Jesús Castro-Marrero, Esther Serrano-Pertierra, Myriam Oliveira-Rodríguez, Maria Cleofé Zaragoza, Alba Martínez-Martínez, María del Carmen Blanco-López & José Alegre in Journal of Extracellular Vesicles … Continue reading

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Curb on zero-hour care worker contracts and ‘call clipping’

Welsh Government announcement, 2 April 2018: New requirements to ensure care workers are treated fairly come into force New requirements to ensure care staff who look after people in their own homes are treated fairly and people receiving care experience the best … Continue reading

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Forward ME group writes to the Science Media Centre

ME Research UK blog post, 5 April 2018: Forward-ME Group Letter – Science Media Group Forward-ME Group Letter Forward-ME Group Chair, The Countess of Mar, has written on behalf of the members of the Group to the Chief Executive of … Continue reading

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