Author Archives: wames
You & yours on Radio 4 discusses treatment for ME & CFS
BBC Radio 4 programme You and yours invited Dr Charles Shepherd, Dr Esther Crawley and the general public to discuss what treatment is offered for ME & CFS and whether the NICE guidelines should be updated. You can listen … Continue reading
OMF resources for parents of children with ME/CFS
The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading
Guidelines, not tramlines – NICE guidance is not mandatory
NICE director’s blog post, by Mark Baker, 15 Sep 2017: Guidelines, not tramlines Professor Mark Baker, director of the centre of guidelines at NICE Mark sets the record straight A recent headline in the Times said ‘Doctors must send obese … Continue reading
Glial cell inhibitors: the next sleep drugs for FM and ME/CFS?
Health Rising blog post, by Cort Johnson, 15 September: Glial Cell Inhibitors: The Next Sleep Drugs for Fibromyalgia and Chronic Fatigue Syndrome (ME/CFS)? Glia: The Forgotten Brain Cell Sleep disturbances and severe stress as glial activators: key targets for … Continue reading
From “sick” to “disabled”: my own journey
Chronic Illness Inclusion Project blog post, by Catherine Hale [person with ME], 13 June 2017: From “sick” to “disabled”: my own journey Catherine Hale looks back at how half a lifetime of chronic illness slowly changed her understanding of “disability”. I’ve been … Continue reading
Trial By Error: The NICE “Topic Expert” Reports (FOI)
Virology blog post, by David Tuller, 11 September 2017: Trial By Error: The NICE “Topic Expert” Reports Freedom of Information requests to NICE My first recent freedom of information request to the National Institute for Health and Care Excellence (NICE) … Continue reading
Molecular underpinnings of ME/CFS explored at the Open Medicine Foundation Symposium
Health rising blog post, by Cort Johnson, 8 September: Molecular Underpinnings of ME/CFS Explored at the Open Medicine Foundation Symposium “This is not a disease that can be solved by one person. It needs a community, and lots of expertise. … Continue reading
Review of research into treatments for anxiety in children with CFS
Review abstract: What treatments work for anxiety in children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)? Systematic review, by Sarah Victoria Ellen Stoll, Esther Crawley, Victoria Richards, Nishita Lal, Amberly Brigden, Maria E Loades in BMJ Open Vol 7, #9, p e015481, September 5, 2017 … Continue reading
Altered right anterior insular connectivity & loss of associated functions in adolescent CFS
Research abstract: Altered right anterior insular connectivity and loss of associated functions in adolescent chronic fatigue syndrome, by LA Wortinger, M Glenne Oie, T Endestad, V Bruun Wyller in PLoS One. 2017 Sep 7;12(9) Impairments in cognition, pain intolerance, and … Continue reading
Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?
If you have, or are affected by, a neurological condition, the Wales Neurological Alliance wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With … Continue reading
