Author Archives: wames
Review of research into treatments for anxiety in children with CFS
Review abstract: What treatments work for anxiety in children with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)? Systematic review, by Sarah Victoria Ellen Stoll, Esther Crawley, Victoria Richards, Nishita Lal, Amberly Brigden, Maria E Loades in BMJ Open Vol 7, #9, p e015481, September 5, 2017 … Continue reading
Altered right anterior insular connectivity & loss of associated functions in adolescent CFS
Research abstract: Altered right anterior insular connectivity and loss of associated functions in adolescent chronic fatigue syndrome, by LA Wortinger, M Glenne Oie, T Endestad, V Bruun Wyller in PLoS One. 2017 Sep 7;12(9) Impairments in cognition, pain intolerance, and … Continue reading
Can you help design a Patient Reported Experience Measure (PREM) for neurological conditions?
If you have, or are affected by, a neurological condition, the Wales Neurological Alliance wants your views on how best to capture health care experiences of people who are affected by neurological conditions through creating a fit-for-purpose, Wales wide survey. With … Continue reading
Dr Martin Rhisiart ‘killed himself after ME diagnosis’
BBC News article, 5 September 2017: Dr Martin Rhisiart ‘killed himself after ME diagnosis’ A university professor who acted as an economics adviser for the UK government killed himself after being diagnosed with ME, an inquest in Cardiff has heard. Dr Martin Rhisiart, … Continue reading
Mental health resources now also available in Welsh
Families affected by ME or CFS may also on occasion find themselves under great psychological stress and could benefit with some help. Mind Cymru publishes information and offers support at all levels. Yn Mind Cymru rydym wedi ymrwymo i sicrhau bod … Continue reading
Is poor sleep pummeling the immune system in ME/CFS & FM
Simmaron Research blog post by Cort Johnson, 29 August 2017: Is Poor Sleep Pummeling the Immune System in ME/CFS and Fibromyalgia? A Vicious Circle Examined Most people with chronic fatigues syndrome (ME/CFS) and fibromyalgia (FM) know the consequences of poor sleep … Continue reading
Invisible illness increases risk of suicidal ideation: the role of social workers in preventing suicide
Article abstract: Invisible illness increases risk of suicidal ideation: The role of social workers in preventing suicide, by Cathy L Pederson, Kathleen Gorman-Ezell, Greta Hochstetler-Mayer in Health & Social Work, June 14, 2017 [Preprint] Many chronic, invisible illnesses that involve chronic … Continue reading
Antibodies to adrenergic & muscarinic receptors in ME/CFS
Blog post, by Paolo Maccallini, 29 August 2017: Antibodies to adrenergic and muscarinic receptors in ME/CFS, During the Community Symposium on the molecular basis of ME/CFS two different groups of researchers reported on the increased level of antibodies to beta adrenergic and … Continue reading
Sleep patterns among patients with chronic fatigue
Research Abstract: Sleep patterns among patients with chronic fatigue: A polysomnography-based study, by Evelina Pajediene, Indre Bileviciute-Ljungar and Danielle Friberg in The Clinical Respiratory Journal [Version online: 2 AUG 2017] Objectives: The purpose of this study was to detect treatable sleep … Continue reading
ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading