Author Archives: wames

Report of the Community Symposium on the Molecular Basis of ME/CFS

Posted on 08/29/2017 by wames

The first Open Medicine Foundation Community Symposium on the Molecular Basis of ME/CFS On August 12, 2017, the Community Symposium on the Molecular Basis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) convened ~ 300 researchers, clinicians, patients, caregivers, families, and advocates … Continue reading →

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Scientific progress stumbles without a valid case definition

Posted on 08/23/2017 by wames

OUP blog post, by Leonard A. Jason, August 20th 2017: Scientific progress stumbles without a valid case definition Current estimates from the Centers for Disease Control and Prevention (CDC) of the number of people in the United States with chronic … Continue reading →

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Contesting the psychiatric framing of ME/CFS

Posted on 08/22/2017 by wames

Article abstract: Contesting the psychiatric framing of ME/CFS, by Helen Spandler, Meg Allen in Social Theory & Health, v 15 pp 1–15 [Published Online: 16 August 2017] ME/CFS is a medically contested illness and its understanding, framing and treatment has been the subject of heated … Continue reading →

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Exercise tests suggest autoimmunity causes the exertion problems in CFS, FM & POTS

Posted on 08/21/2017 by wames

Health rising blog post, by Cort Johnson, 16 August 2017: Exercise Tests Suggest Autoimmunity Causes the Exertion Problems in Chronic Fatigue Syndrome, Fibromyalgia and POTS Researchers and doctors get interested in ME/CFS in different ways. Many have a personal connection, … Continue reading →

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Inflammation correlates with symptoms in CFS

Posted on 08/18/2017 by wames

Research overview abstract: Inflammation correlates with symptoms in chronic fatigue syndrome, by Anthony L Komaroff in PNAS August 15, 2017 It is not unusual for patients who say they are sick to have normal results on standard laboratory testing. The physician … Continue reading →

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‘The most common disease you’ve never seen’: how one woman turned her illness into a life-changing film

Posted on 08/17/2017 by wames

Telegraph article, by Alan Vincent, 11 August 2017: ‘The most common disease you’ve never seen’: how one woman turned her illness into a life-changing film   Jennifer Brea was 28 when she was bedridden with a high fever. As she … Continue reading →

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The ME/CFS Symposium at Stanford – watch the video

Posted on 08/16/2017 by wames

The ME/CFS Symposium held at Stanford on Saturday August 12th 2017 can be viewed online: https://youtu.be/s7bBMXQSmuM The start times of each speaker: Open Medicine Foundation’s Community Symposium is now available to view online for anyone who was unable to watch … Continue reading →

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The Mail online asks: Why are doctors and patients still at war over ME?

Posted on 08/15/2017 by wames

Mail online post, by Jerome Burns, 15 August 2017: Why are doctors and patients still at war over M.E.? How the best treatment for the debilitating condition is one of the most bitterly contested areas in medicine Myalgic encephalomyelitis can … Continue reading →

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FITNET’s internet-based CBT may impede natural recovery in adolescents with ME/CFS

Posted on 08/14/2017 by wames

Review abstract: FITNET’s Internet-Based Cognitive Behavioural Therapy is ineffective and may impede natural recovery in adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A Review, by Simin Ghatineh and Mark Vink in Behav Sci (Basel). 2017 Aug 11;7(3). pii: E52 The Dutch Fatigue … Continue reading →

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Is SEID comparable to research case definitions of CFS?

Posted on 08/12/2017 by wames

Two groups of American researchers debate the appropriateness of using case definitions for research purposes. Article abstract: Mistaken conclusions about systemic exercise intolerance disease being comparable to research case definitions of CFS: a rebuttal to Chu et al., by Leonard A. Jason, Madison Sunnquist, Kristen … Continue reading →

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