Author Archives: wames

Epistemic injustice in healthcare encounters: evidence from CFS/ME

Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) remains a controversial illness category. This paper surveys the state of knowledge and attitudes about this illness and proposes that epistemic concerns about the testimonial credibility of patients can be articulated … Continue reading

Posted in News | Tagged , , , , | Comments Off on Epistemic injustice in healthcare encounters: evidence from CFS/ME

Newcastle University experts in hunt for “smoking gun” of CFS/ME

Northern echo news article, by Tony Kearney, 29 Nov 2016: Newcastle University experts in hunt for “smoking gun” of chronic fatigue syndrome ME UNIVERSITY scientists are leading research to develop a simple blood test for the chronic fatigue syndrome ME. … Continue reading

Posted in News | Comments Off on Newcastle University experts in hunt for “smoking gun” of CFS/ME

Podcast about CFS/ME research with Melbourne researcher Chris Armstrong

insidestory.com.au, 24 Nov 2016: In Melbourne, progress on chronic fatigue Peter Clarke talks to Bio21 researcher Chris Armstrong about new research that challenges popular views of this enigmatic illness With its debiliating symptoms – fatigue, “brain fog,” pain, gastrointestinal disorders – and its elusive … Continue reading

Posted in News | Tagged , | Comments Off on Podcast about CFS/ME research with Melbourne researcher Chris Armstrong

Experiences of GP continuity among women with CFS/ME in Norway

Research abstract: Background:  Continuity of care is important for patients with chronic illness in need of coordinated healthcare services from multiple providers. Little is known about how patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience continuity of GP care. This study explores how … Continue reading

Posted in News | Tagged , | Comments Off on Experiences of GP continuity among women with CFS/ME in Norway

A targeted genome association study examining transient receptor potential ion channels, acetylcholine receptors, and adrenergic receptors

Research abstract: BACKGROUND: Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (CFS/ME) is a debilitating condition of unknown aetiology. It is characterized by a range of physiological effects including neurological, sensory and motor disturbances. This study examined candidate genes for … Continue reading

Posted in News | Tagged , , , , , | Comments Off on A targeted genome association study examining transient receptor potential ion channels, acetylcholine receptors, and adrenergic receptors

Dr Phil Hammond writes about the ‘ME cluster bomb’

Private eye Medicine Balls column, 25 November 2016: ‘ME cluster bomb’  [Written by ‘M.D.’, the nom de plume of Dr Phil Hammond and reproduced by the ME Association]: MD’s greatest regret as a junior doctor was not to take the time to … Continue reading

Posted in News | Tagged , , | Comments Off on Dr Phil Hammond writes about the ‘ME cluster bomb’

Making a difference for ME in Wales – WAMES team coordinator opportunities

Would you like to help make a difference for ME in Wales but are not sure you have enough time or good health to volunteer in a big way? To make it easier for people to join in we are setting up … Continue reading

Posted in News | Tagged | Comments Off on Making a difference for ME in Wales – WAMES team coordinator opportunities

Prevalence of POTS in Dutch people with CFS

Research abstract: BACKGROUND: Postural orthostatic tachycardia syndrome (POTS) is considered a diagnostic marker for chronic fatigue syndrome (CFS). OBJECTIVES: The aims of this study were to (i) compare POTS prevalence in a CFS cohort with fatigued patients not meeting CFS criteria, and … Continue reading

Posted in News | Tagged , , , | Comments Off on Prevalence of POTS in Dutch people with CFS

WAMES challenge – Easyfundraising for Black Friday

Did you know that when you’re shopping online for Black Friday deals you could be raising a free donation for WAMES?   There are over 3,100 shops and sites on board ready to make a donation, including Amazon, John Lewis … Continue reading

Posted in News | Tagged , | Comments Off on WAMES challenge – Easyfundraising for Black Friday

What do you do when a loved one becomes chronically ill?

Third Age blog post, by Suzan Jackson: What do you do when a loved one becomes chronically ill? Sooner or later, it happens to all of us. A beloved friend or family member develops a chronic illness, and their life … Continue reading

Posted in News | Tagged , | Comments Off on What do you do when a loved one becomes chronically ill?