Author Archives: wames
Epistemic injustice in healthcare encounters: evidence from CFS/ME
Research abstract: Chronic fatigue syndrome or myalgic encephalomyelitis (CFS/ME) remains a controversial illness category. This paper surveys the state of knowledge and attitudes about this illness and proposes that epistemic concerns about the testimonial credibility of patients can be articulated … Continue reading
Newcastle University experts in hunt for “smoking gun” of CFS/ME
Northern echo news article, by Tony Kearney, 29 Nov 2016: Newcastle University experts in hunt for “smoking gun” of chronic fatigue syndrome ME UNIVERSITY scientists are leading research to develop a simple blood test for the chronic fatigue syndrome ME. … Continue reading
Podcast about CFS/ME research with Melbourne researcher Chris Armstrong
insidestory.com.au, 24 Nov 2016: In Melbourne, progress on chronic fatigue Peter Clarke talks to Bio21 researcher Chris Armstrong about new research that challenges popular views of this enigmatic illness With its debiliating symptoms – fatigue, “brain fog,” pain, gastrointestinal disorders – and its elusive … Continue reading
Experiences of GP continuity among women with CFS/ME in Norway
Research abstract: Background: Continuity of care is important for patients with chronic illness in need of coordinated healthcare services from multiple providers. Little is known about how patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) experience continuity of GP care. This study explores how … Continue reading
A targeted genome association study examining transient receptor potential ion channels, acetylcholine receptors, and adrenergic receptors
Research abstract: BACKGROUND: Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (CFS/ME) is a debilitating condition of unknown aetiology. It is characterized by a range of physiological effects including neurological, sensory and motor disturbances. This study examined candidate genes for … Continue reading
Dr Phil Hammond writes about the ‘ME cluster bomb’
Private eye Medicine Balls column, 25 November 2016: ‘ME cluster bomb’ [Written by ‘M.D.’, the nom de plume of Dr Phil Hammond and reproduced by the ME Association]: MD’s greatest regret as a junior doctor was not to take the time to … Continue reading
Making a difference for ME in Wales – WAMES team coordinator opportunities
Would you like to help make a difference for ME in Wales but are not sure you have enough time or good health to volunteer in a big way? To make it easier for people to join in we are setting up … Continue reading
Prevalence of POTS in Dutch people with CFS
Research abstract: BACKGROUND: Postural orthostatic tachycardia syndrome (POTS) is considered a diagnostic marker for chronic fatigue syndrome (CFS). OBJECTIVES: The aims of this study were to (i) compare POTS prevalence in a CFS cohort with fatigued patients not meeting CFS criteria, and … Continue reading
WAMES challenge – Easyfundraising for Black Friday
Did you know that when you’re shopping online for Black Friday deals you could be raising a free donation for WAMES? There are over 3,100 shops and sites on board ready to make a donation, including Amazon, John Lewis … Continue reading
What do you do when a loved one becomes chronically ill?
Third Age blog post, by Suzan Jackson: What do you do when a loved one becomes chronically ill? Sooner or later, it happens to all of us. A beloved friend or family member develops a chronic illness, and their life … Continue reading