Category Archives: News
Rehmeyer makes statisticians’ ‘jaws drop’ over PACE
MEAction blog post by Alex Anderssen, 8 August 2016: Rehmeyer makes statisticians’ ‘jaws drop’ over PACE Science writer Julie Rehmeyer presented a critique of the PACE trial to North America’s largest gathering of statisticians in Chicago earlier this week. Her talk was titled, “Bad … Continue reading
The harms done by the biopsychosocial model of ME
Letter in response to: Chronic fatigue syndrome: is the biopsychosocial model responsible for patient dissatisfaction and harm?, by John Peters, patient, 31 July 2016 Geraghty & Esmail are right to draw attention to the harm done to the doctor-patient relationship … Continue reading
Mild cognitive impairment found to worsen driving skills
New research is showing that even mild cognitive impairments, short of dementia, have the potential to affect driving skills. CBC news blog post, 28 July 2016: Driving and dementia: A delicate balance How to assess the driving fitness of people … Continue reading
Reversal of Refractory Ulcerative Colitis & severe CFS symptoms
Case report abstract: BACKGROUND: Patients with multisymptom chronic conditions, such as refractory ulcerative colitis (RUC) and chronic fatigue syndrome (CFS), present diagnostic and management challenges for clinicians, as well as the opportunity to recognize and treat emerging disease entities. In … Continue reading
2016 – In remembrance
Yet still I must demand and demand again. Their death demands we ask for integrity and truth. But there is so little of it out there All lost in compromise or outright denial and ignorance. The dead grow, Shockingly. Loved … Continue reading
Severe ME Remembrance Day, 8 Aug 2016
Severe Myalgic Encephalomyelitis Understanding and Remembrance Day August 8th 2016 Why have an Understanding and Remembrance Day highlighting the plight of the severely affected? The severity of this illness often makes it impossible for people to have contact with loved … Continue reading
Effects of telephone-delivered cognitive behavioral stress management intervention in CFS
Research abstract: The perceived impact of chronic fatigue on daily living (i.e., fatigue interference) is particularly relevant for patients diagnosed with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME), a medically unexplained illness associated with neuroendocrine and immune abnormalities. Literature suggests that fatigue … Continue reading
Neuromuscular strains in ME/CFS
ME Research UK research article, 2 August 2016: Neuromuscular strains In the diagnosis and assessment of ME/CFS, there is a great need for simple objective measures that can differentiate the condition from other chronic illnesses, particularly after 24 or 48 … Continue reading
Three approaches to CFS in the UK, Australia, & Canada: lessons for democratic policy
Research abstract: Decisions about diagnostic categories through clinical practice guidelines (CPGs) represent a central type of informal policy-making which affect the scope of publicly-regulated health services and directions for future research. We examine the development of three diverse sets of CPGs for chronic fatigue … Continue reading
Human herpesvirus 6 and 7 are biomarkers for fatigue
Research highlights: Salivary HHV-6 and HHV-7 can be used for assessment of physiological fatigue. Activation and differentiation of macrophages are needed for viral reactivation. Salivary HHV-6 and HHV-7 do not increase with pathological fatigue. Salivary HHV-6/7 can distinguish between physiological … Continue reading
