Category Archives: News
Efficacy of rintatolimod (Ampligen) in CFS/ME
Review abstract: Chronic fatigue syndrome/ Myalgic encephalomyelitis (CFS/ME) is a poorly understood seriously debilitating disorder in which disabling fatigue is an universal symptom in combination with a variety of variable symptoms. The only drug in advanced clinical development is rintatolimod, … Continue reading
Are people with ME disabled?
TIPSFORME blog: Are you Disabled?, by Jenny, 15 April 2016 On Twitter there have been some interesting discussions this week about disability identity and ME. I think this is worth everyone with ME thinking about. For most of us ME is … Continue reading
Video interview with parent Mary Dimmock about her son and rituximab
Episode 78 of Llewellyn King’s ME/CFS Alert videos interviews Mary Dimmock, whose son has ME and who is receiving RITUXAN (rituximab) treatment privately. (24 mins)
An examination of an ME online community discussion
Research abstract: Online communities, created and sustained by people sharing and discussing texts on the internet, play an increasingly important role in social health movements. In this essay, we explore a collective mobilization in miniature through an in-depth analysis of … Continue reading
The Toll-Like Receptor Radical Cycle Pathway – the key to drug treatment for secondary chronic fatigue
Review abstract: In this review we discuss that peripheral and central activation of the Toll-like receptor 2/4 (TLR2/4) Radical Cycle may underpin the pathophysiology of immune-related chronic fatigue secondary to other medical diseases and conditions. The TLR Radical Cycle plays … Continue reading
New clinical guidelines for ME/CFS from Alberta, Canada
New Clinical Practice Guidelines for ME/CFS have been produced in Alberta, Canada drawing on the Canadian consensus criteria, IOM guidelines and recent research findings: Identification and symptom management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Quote from p6: In summary, … Continue reading
Patients with CFS have significant measureable sleep problems
Research abstract: Background: Sleep disturbance affects almost 95% of people with chronic fatigue syndrome (CFS). However, existing studies of sleep in CFS have shown mixed results and methodological issues prevent between-study comparisons. Purpose: To redress this, the present study aimed to investigate whether … Continue reading
What I’m really thinking: the person with ME
Guardian article, by Anonymous, 16 April 2016: What I’m really thinking: the person with ME It is sometimes called chronic fatigue syndrome, but that’s a bit of a misnomer. I’m not just tired I have myalgic encephalomyelitis. If you think it … Continue reading
A person with ME responds to MS drug Copaxone
A Chronic Fatigue Syndrome/POTS Patient Responds to a Multiple Sclerosis Drug – What Does It Mean? Discussion started by Cort Johnson, Mar 30, 2016 on Health Rising blog: Before 2002 Rachel owned two businesses, had boundless energy, worked out with … Continue reading
Treatment expectations influence the outcome
Research abstract: OBJECTIVE: To improve the effectiveness of treatment in patients with chronic fatigue syndrome it is worthwhile studying factors influencing outcomes. The aims of this study were (1) to assess the association of expectancy and credibility on treatment outcomes, … Continue reading
