Category Archives: News
New clinical guidelines for ME/CFS from Alberta, Canada
New Clinical Practice Guidelines for ME/CFS have been produced in Alberta, Canada drawing on the Canadian consensus criteria, IOM guidelines and recent research findings: Identification and symptom management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Quote from p6: In summary, … Continue reading
Patients with CFS have significant measureable sleep problems
Research abstract: Background: Sleep disturbance affects almost 95% of people with chronic fatigue syndrome (CFS). However, existing studies of sleep in CFS have shown mixed results and methodological issues prevent between-study comparisons. Purpose: To redress this, the present study aimed to investigate whether … Continue reading
What I’m really thinking: the person with ME
Guardian article, by Anonymous, 16 April 2016: What I’m really thinking: the person with ME It is sometimes called chronic fatigue syndrome, but that’s a bit of a misnomer. I’m not just tired I have myalgic encephalomyelitis. If you think it … Continue reading
A person with ME responds to MS drug Copaxone
A Chronic Fatigue Syndrome/POTS Patient Responds to a Multiple Sclerosis Drug – What Does It Mean? Discussion started by Cort Johnson, Mar 30, 2016 on Health Rising blog: Before 2002 Rachel owned two businesses, had boundless energy, worked out with … Continue reading
Treatment expectations influence the outcome
Research abstract: OBJECTIVE: To improve the effectiveness of treatment in patients with chronic fatigue syndrome it is worthwhile studying factors influencing outcomes. The aims of this study were (1) to assess the association of expectancy and credibility on treatment outcomes, … Continue reading
PLOS One journal restates position on data sharing to Prof Coyne
In the standoff over release of the PACE PLOS One trial data, has the journal just blinked? by James Coyne, 7 April 2016 I just received (April 7, 2016) another communication from the Managing Editor of PLOS One reporting an … Continue reading
The misrepresentation of ME in nursing
Article abstract: Re : Diagnosing and managing chronic fatigue syndrome, by D Roberts in Nursing in Practice 89 (2016) Every nurse has a duty to speak up about wrong practice, or the potential to do harm, I have grave concerns … Continue reading
Problem-Solving Toolkit – to help you access support services
Problem-Solving Toolkit This toolkit from Cerebra aims to support disabled people and carers, as well as their families and advisers, who are encountering difficulties with the statutory agencies in relation to the provision of health, social care and education support … Continue reading
PACE trial invalidates the use of CBT & GET in ME/CFS
Article abstract: The main findings reported in the PACE trial were that cognitive behavioral therapy (CBT) and graded exercise therapy (GET) were moderately effective treatments for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), and fear avoidance beliefs constituted the strongest mediator of both … Continue reading
A list of ME abnormalities & research citations
Paradigm change blog article, 4 April 2016: ME medical abnormalities More than 500 peer-reviewed articles have been published demonstrating a wide variety of physiological abnormalities in patients with “Chronic Fatigue Syndrome” (a broader condition that currently encompasses patients with the more … Continue reading
