Category Archives: News
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
Gwyn’s sponsored walk for ME Research UK
Ex ME Sufferer Gwyn Hopkins is to walk 150 miles to raise money for charity ME Research UK. “I suffered from ME. for 5 years, at first bed bound, then in a wheelchair. I made a complete recovery by the … Continue reading
IOM report comment
Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: An IOM Report on Redefining an Illness, by Ellen Wright Clayton MD JD in JAMA March 17, 2015, Vol 313, No. 11 Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a multisystem and often long-lasting disorder, with … Continue reading
Effect of household tasks on people with chronic fatigue & their partners
Research abstract: This study examined salivary cortisol levels in couples in which one member had unexplained chronic fatigue (CF). The couples completed questionnaires and seven household activities in a laboratory setting and provided salivary cortisol samples prior to and immediately … Continue reading
Comparison of consensus & empirical ME/CFS definitions & criteria
Research abstract: Background: Since the publication of the CFS case definition [Fukuda K, Straus SE, Hickie I, Sharpe MC, Dobbins JG, Komaroff A. The chronic fatigue syndrome: a comprehensive approach to its definition and study. Ann Intern Med. 1994;121:953-959], there … Continue reading
Countess of Mar on politics and ME
The Countess of Mar addressed the Royal Society of Medicine’s meeting: ME/CFS: Frontiers in research, clinical practice and public perception, Wednesday 18 March 2015 Ladies and gentlemen, I am grateful to the Royal Society of Medicine who have given me the … Continue reading
Claire Jones, Welsh harpist with ME
Claire Jones, former Royal harpist from Pembrokeshire, talks about her experience of ME and road to recovery through homeopathy, chiropractic treatment, nutrition and psychological therapies. She advises people with ME to listen to their bodies and calls for better services. Her … Continue reading
Distinct stages found in ME/CFS
Research abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an unexplained incapacitating illness that may affect up to 4 million people in the United States alone. There are no validated laboratory tests for diagnosis or management despite global efforts to find … Continue reading
MRI shows differences between CFS and depression
Research article: White matter (WM) involvement in chronic fatigue syndrome (CFS) was assessed using voxel-based regressions of brain MRI against CFS severity scores and CFS duration in 25 subjects with CFS and 25 normal controls (NCs). As well as voxel-based … Continue reading
Patients with a chronic condition need support to self-manage
Research review: Background: Receiving adequate support seems to be crucial to the success of self-management. Although different empirical studies separately examined patients’ preferences for self-management support (SMS), an overview is lacking. Objective: The aim of this qualitative review was to … Continue reading
