Category Archives: News
Immune activation in the central nervous system of ME/CFS found by cytokine network analysis of cerebrospinal fluid
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome is an unexplained debilitating disorder that is frequently associated with cognitive and motor dysfunction. We analyzed cerebrospinal fluid from 32 cases, 40 subjects with multiple sclerosis and 19 normal subjects frequency-matched for age and … Continue reading
Developing case definitions for ME and CFS using practical experience and consensus
Research abstract: Background: There has been considerable controversy regarding how to name and define the illnesses known as myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS). The Institute of Medicine (IOM) report has proposed new clinical criteria and a new name for this … Continue reading
Healthwise Wales study
HealthWise Wales is a Welsh Government initiative to involve everyone in Wales in improving the health and wellbeing of the population, by taking part in research. They are asking you to: Help them to work out the most important questions on … Continue reading
Overview of evidence for biochemical muscle abnormality in CFS
Review article abstract: Introduction: Chronic fatigue syndrome/ Myalgic Encephalomyelitis (CFS/ME) is a debilitating disorder of unknown aetiology and is characterised by severe disabling fatigue in the absence of an alternative diagnosis. Historically, there has been a tendency to draw psychological explanations … Continue reading
Chronic fatigue affects 1.9% of 16 year olds & is more common with family adversity
Research abstract: BACKGROUND: In the Avon Longitudinal Study of Parents and Children (ALSPAC) birth cohort, chronic disabling fatigue lasting ≥6 months affected 1.3% of 13-year-olds, was equally common in boys and girls, and became more prevalent with increasing family adversity. … Continue reading
Plans to modernise non-emergency patient transport services
Welsh Government Press release: New plans to modernise non-emergency patient transport services in Wales unveiled, 15 January 2016 Non-emergency patient transport services in Wales will be enhanced and their operating hours extended as part of wide-ranging plans to modernise the … Continue reading
Blue badge now also available to people with cognitive impairment
Welsh Government press release, 21 December 2015: Modernising the Blue Badge Scheme In January 2010 we published our action plan for modernising the Blue Badge Scheme. Following that we have worked to deliver the priorities in the action plan, which … Continue reading
Tuller discusses the nature of bias in the PACE trial
Virology blog: Trial By Error, Continued: More Nonsense from The Lancet Psychiatry by David Tuller, 19 January 2016 The PACE authors have long demonstrated great facility in evading questions they don’t want to answer. They did this in their response … Continue reading
PINCHED – Neuron Protein Marker studied in ME/CFS
Cort Johnson reports on The Role of PINCH in Chronic Energy Deficit in the CNS. The National CFIDS Foundation PINCH study is a timely one given the interest in neuroinflammation in ME/CFS. Hopefully over the next year we’ll get a … Continue reading
Dr Fred Friedberg on the meaning of ‘recovery’ in the PACE trial
Dr Fred Friedberg, IACFS/ME President comments: In a significant development regarding the controversial PACE trial, the largest and most influential behavioral treatment trial of CFS/ME to date, a recent open letter to the editor of the Lancet was published by a distinguished group of … Continue reading
