Category Archives: News
Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy & graded exercise therapy for patients with ME/CFS: a systematic review
Assessment of the scientific rigour of randomized controlled trials on the effectiveness of cognitive behavioural therapy and graded exercise therapy for patients with myalgic encephalomyelitis/chronic fatigue syndrome: A systematic review, by SA Ahmed, JC Mewes, HJM Vrijhoef in Journal of Health … Continue reading
Varied presentation of ME/CFS & the needs for classification & clinician education: a case series
Varied presentation of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and the needs for classification and clinician education: a case series, by Eva Martín-Martínez, & Mercedes Martín-Martínez in Clinical Therapeutics vol 41, issue 4, pages 619–624, April 2019 Abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome … Continue reading
In the news: Missing from their lives, missing from healthcare services
ME Awareness week – in the BBC news in Wales “All round the world millions of people are missing from their lives. In Wales people are also missing from the healthcare system. When we go to the surgery we’re not … Continue reading
BBC Wales news: ‘Humanitarian crisis’ for ME sufferers in Wales
BBC Wales News article, 11 May 2019: ‘Humanitarian crisis’ for ME sufferers in Wales “People thought I’d moved away or joined a nunnery”, said Marian Gray, who admits going “missing from life”. She disappeared because she was one of … Continue reading
Cardiff University plans research into ME/CFS using ME/CFS Biobank samples
CureME (leading research into ME) blog post: Biobank users Samples from our Biobank are available to external researchers around the globe. Making these samples available to other researchers increases the chances of achieving much-needed breakthroughs in the aetiology and treatment … Continue reading
ME awareness – in the workplace
Explaining ME in the workplace Raising awareness of ME is always a good idea – yes? But is telling others about your experience of ME always a good idea? There are many creative ways to describe to friends and family … Continue reading
Millions of parents missing millions of moments
Millions of parents Missing millions of moments Missing due to lack of research and care for people with myalgic encephalomyelitis Do not let them miss a moment more #MillionsMissing
We had lives. Now we are the #MillionsMissing.
We were dancers We were athletes We were adventurers We had careers We had plans We had dreams We had lives Now we are the #MillionsMissing
Join #MillionsMissing virtual & visibility actions, May 2019
#MillionsMissing – a global campaign for health equality A global, grassroots network for people with Myalgic Encephalomyelitis and Chronic Fatigue Syndrome Join the virtual action in Wales on ME Awareness day – May 12th Sign up to show you are … Continue reading
