Tag Archives: Action for ME
AfME apologises for its role in the PACE trial & clarifies its change of position
Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading
PACE Trial reanalysis in the news – Findings of £5m ME chronic fatigue study ‘worthless’
Times article, by Tom Whipple, Science Editor, 22 March 2018: Findings of £5m ME chronic fatigue study ‘worthless’ [register for free to read 2 articles a week] Scientists have questioned the robustness of a study that recommended exercise and cognitive behavioural therapy … Continue reading
AfME invites PhD proposals for biomedical research pilot projects
Action for ME blog post, 10 Oct 2017: Call for biomedical PhD research proposals now open Action for M.E. is inviting PhD proposals for high-quality biomedical research pilot projects that will address the biology of Myalgic Encephalomyelitis (M.E.)/Chronic Fatigue Syndrome (CFS). … Continue reading
ME costs UK economy over £3 billion
Action for M.E. blog post, 28 Sep 2017: ME costs UK economy over £3 billion M.E. cost the UK economy at least £3.3 billion in 2014/15, according to a research report published today. The figures account for healthcare costs, disability-related … Continue reading
FITNET trial reporting is misleading
Major charities and individuals have joined WAMES in expressing concern about the nature of the FITNET trial being run by Prof Esther Crawley, the lack of objective analysis in the media coverage and the questionable results from the original Dutch trial. WAMES does … Continue reading
Poor medical care & neglect are major factors in ME/CFS suicide
Shout about ME blog post, by Russell Logan, 14 May 2016: Suicide risk 5 times higher in ME/CFS: Poor medical care, neglect are major factors The risk of suicide among ME/CFS patients is a staggering five times higher than the … Continue reading
ME not conversion disorder, says AfME
Action for M.E. criticises psychosomatic M.E. claim, January 27, 2016 Action for M.E. has criticised an article on Psych Central claiming M.E./CFS is a psychosomatic illness and the result of conversion disorder. [the article has since been removed] In their comment … Continue reading
Close to collapse – Shocking report exposes failings in ME social care
Shocking’ report exposes failings in ME social care, By Raya Al Jadir in Disability News Service, November 13, 2015 A tiny proportion of disabled people with the neurological condition ME are receiving the social care they could be entitled to, according to … Continue reading
Do people with ME and CFS really recover?
The Recovery Question, by Dan Neuffer in Health Rising Forum, Sep 17 2015 There is much information out there on how to diagnose Fibromyalgia Syndrome (FMS) or Chronic Fatigue Syndrome (CFS) (also described as Myalgic Encephalomyelitis or ME). And whilst … Continue reading
Patients’ ME research priorities
Research abstract: Background: The aim of this work was to involve patients in setting future priorities for myalgic encephalomyelitis (M.E.) research. Methods: A national on-line survey was developed collecting structured and unstructured data. Respondents were asked what they considered Action … Continue reading
