Tag Archives: Chronic illness
Research: The depressing truth about depression scales for people with chronic invisible illness
The depressing truth about depression scales for people with chronic invisible illness, by CL Pederson, BM Wagner Research conclusions: People with chronic invisible illnesses like POTS, CFS/ME, EDS, MCAS, and fibromyalgia have numerous and often severe somatic symptoms related … Continue reading
Research: Feeling like ‘a damaged battery’: …lived experiences of UK university students with ME/CFS
Feeling like ‘a damaged battery’: Exploring the lived experiences of UK university students with ME/CFS, by Frances Waite, Dely Lazarte Elliot in Fatigue: Biomedicine, Health & Behavior, 23 Aug 2021 [doi.org/10.1080/21641846.2021.1969800] Research abstract: Introduction: Research regarding students with myalgic … Continue reading
Identifying & managing suicidality in ME/CFS
Identifying and managing suicidality in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome, Lily Chu, Meghan Elliott, Eleanor Stein, Leonard A Jason in Healthcare Vol 9, #6, 629 May 25, 2021 (This article belongs to the Special Issue ME/CFS – the Severely and Very … Continue reading
Sick of the sick role: narratives of what ‘recovery’ means to people with CFS/ME
Sick of the sick role: narratives of what “Recovery” means to people with CFS/ME, by Anna Cheshire, Damien Ridge, Lucy V Clark, Peter D White in Qualitative Health Research Vol 31, Issue 2, 2021 [doi.org/10.1177/1049732320969395] Research abstract: Little is … Continue reading
Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners
Perceptions of person-centred care amongst individuals with chronic conditions who consult complementary medicine practitioners, by Hope Foley, Amie Steel, Jon Adams in Complementary Therapies in Medicine Vol 52, August 2020, 102518 [doi.org/10.1016/j.ctim.2020.102518] Highlights Chronic illness care in complementary medicine … Continue reading
Environmental accommodations for university students affected by ME/CFS
Environmental accommodations for university students affected by myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), by Lily Chu, Lynn R Fuentes, Olena M Marshall and Arthur A. Mirin in Work pp. 1-12, 2020[DOI: 10.3233/WOR-203176] Research abstract: Background: Today, 24% of college and … Continue reading
Report: Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness
Energy impairment and disability inclusion: towards an advocacy movement for energy limiting chronic illness, by Catherine Hale, Stef Benstead, Jenny Lyus, Evan Odell and Anna Ruddock. Centre for Welfare reform: April 2020 DRILL Blog post: Energy impairment and disability inclusion … Continue reading
Inclusive education for students with chronic illness – technological challenges & opportunities
Inclusive education for students with chronic illness – technological challenges and opportunities, by Anna Wood. Chapter in book: Artificial Intelligence and Inclusive Education Perspectives on Rethinking and Reforming Education pp135-148 [June 14 2019] Chapter abstract: Although the general issues related … Continue reading
Couples’ experiences of interacting with others in CFS: a qualitative study
Abstract Objectives: Social isolation and stigma are frequently reported by patients with chronic fatigue syndrome/myalgic encephalomyelitis and relationships in the home environment with those close to the patients (their ‘significant others’) may thus be particularly important. Rather little attention has … Continue reading
