Tag Archives: Dr Esther Crawley
CFS symptom profiles in UK & Netherlands
Research highlights: • We explore chronic fatigue syndrome (CFS) phenotypes in two large clinical cohorts. • Adults with CFS may have one of 6 symptom-based phenotypes. • Phenotypes were associated with sex, duration of illness, and comorbidity. • Polysymptomatic patients … Continue reading
What matters to children with CFS/ME? devising a PROM
Research abstract: Background: Paediatric chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) is relatively common and disabling. Research is hampered because current patient-reported outcome measures (PROMs) do not capture outcomes that are important to children with CFS/ME. Aim The aim of this study was to … Continue reading
ME parents’ fury at child abuse claims
Article in Sunday Express by Caroline Wheeler, June 21, 2015: Hundreds of parents whose children suffer from a crippling illness that leaves them permanently exhausted have been falsely accused of child abuse. Charities have helped hundreds of families of children with … Continue reading
Defining recovery in children
Research abstract: Aims: To describe how recovery from paediatric CFS/ME is defined, how many children recover and how long it takes. Methods: We conducted detailed literature searches of MEDLINE, EMBASE, PsycInfo and the Cochrane library, searched trial registration sites, contacted … Continue reading
Better ways of assessing severity of illness and treatment outcomes needed for children with CFS/ME
Abstract Chronic Fatigue Syndrome or Myalgic Encephalomyelitis (CFS/ME) in children is characterized by persistent or recurrent debilitating fatigue which results in a substantial reduction in activity. There is a growing interest in the use of questionnaires, or patient-reported outcome measures … Continue reading
29% of children with CFS suffer significant psychological distress
Abstract Objective To describe the prevalence of depression in children with chronic fatigue syndrome (CFS)/myalgic encephalomyelitis (ME) and investigate the relationship between depression in CFS/ME and clinical symptoms such as fatigue, disability, pain and school attendance. Design Cross-sectional survey … Continue reading
