Tag Archives: Dr Esther Crawley
CFS, Bristol University, & controversial science
The Bristol Cable blog post, by Lorna Stephenson, 7 July 2017: Chronic fatigue syndrome, Bristol University, and controversial science, Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid … Continue reading
Practical management of CFS or ME in childhood
Article abstract: Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood, by A Brigden, M Loades M, A Abbott, J Bond-Kendall, E Crawley in Archives of Disease in Childhood [Preprint June 28 2017] Full article behind paywall Paediatric chronic fatigue syndrome … Continue reading
David Tuller writes to the CFS/ME Research Collaborative re libel charge
Virology blog post , Dr David Tuller, 8 May 2017: Trial By Error, Continued: An Open Letter to the Board of the CFS/ME Research Collaborative To Members of the Board of the CMRC: Not long ago, at the annual conference … Continue reading
Important factors to consider when treating children with CFS/ME
Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading
Children with ME need relevant science, not pressure to do more, more, more
Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading
Natural course of chronic disabling fatigue in adolescents
Research abstract Objective: Little is known about persistence of or recovery from chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) in adolescents. Previous studies have small sample sizes, short follow-up or have focused on fatigue rather than CFS/ME or, equivalently, chronic fatigue, which … Continue reading
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
Correspondence continues between Countess of Mar & BBC
The Countess of Mar was unhappy about the BBC’s reply on 21 November 2016 to her official complaint about their reporting of the proposed UK FITNET trial. On 8 December the Countess wrote to the BBC director-general and this has been published by … Continue reading
BBC reply to Countess of Mar re FITNET reporting
The BBC has replied to the Countess of Mar’s complaint about their reporting of the FITNET trial. 21st November 2016 The Countess of Mar House of Lords London SW1A 0PW Via email: marm@parliament.uk Dear Lady Mar Thank you for getting … Continue reading
Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
