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Rethinking the standard of care for ME/CFS
Rethinking the standard of care for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Fred Friedberg, Madison Sunnquist, Luis Nacul in Journal of General Internal Medicine, Published online: 21 October 2019 [doi.org/10.1007/s11606-019-05375-y ] Article abstract: For over two decades, the standard of … Continue reading
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Tagged CBT, clinical management, cognitive behavioural therapy, Dr Fred Friedberg, Dr Luis Nacul, energy envelope theory, GET, graded exercise therapy, Madison L Sunnquist, PACE, pacing, Post-exertional malaise
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Online pacing tutorial begins January 2019
Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading
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Tagged online course, pacing, The ME/CFS and Fibromyalgia Self-Help Program
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AfME apologises for its role in the PACE trial & clarifies its change of position
Action for M.E. statement on: The PACE trial and behavioural treatments for M.E. On 29th August 2018 Action for ME published a statement explaining the charity’s role in the PACE trial and apologising for their role in contributing to the … Continue reading
ME/CFS patients’ reports of symptom changes following CBT, GET & pacing treatments
Research abstract: Myalgic encephalomyelitis/chronic fatigue syndrome patients’ reports of symptom changes following cognitive behavioural therapy, graded exercise therapy and pacing treatments: Analysis of a primary survey compared with secondary surveys, by Keith Geraghty, Mark Hann, Stoyan Kurtev in Journal of Health … Continue reading
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Tagged CBT, cognitive behavioural therapy, Dr Keith Geraghty, GET, graded exercise therapy, Mark Hann, pacing, patient satisfaction, patient survey, Stoyan Kurtev
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Cwtch support group meets Haverfordwest 7 April
Morning Meeting of Cwtch: 7 April 2017: 10.00 am – 11.30 am at Cashfield Community Centre, Haverfordwest, SA61 2GA Activity: 10am-11am Talk on pacing strategies with physiotherapist, Alec Machenry 11am-12 noon Sam Studley will be demonstrating how to decorate cupcakes. Cwtch … Continue reading
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Tagged cwtch, Haverfordwest, pacing, Pembrokeshire, support group
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Haverfordwest support group meets to share pacing strategies, Fri 3 Feb 2017
Morning Meeting of Cwtch: 10.00 am – 11.30 am at Cashfield Community Centre, Havertfordwest, SA61 2GA Guest Speaker: Alec MacHenry, Physiotherapist Alec will speak between 10.00 am – 11.00 am and afterwards the discussion about pacing strategies will continue. Cwtch … Continue reading
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Tagged cwtch, pacing, Pembrokeshire, support group
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Pace, do not go for boom or bust says Dr Mark Porter
Times article, January 26 2016: Managing chronic fatigue is all about pace — do not go for boom or bust by Dr Mark Porter: New research suggesting that chronic fatigue syndrome is more common in teenagers than previously thought is bound … Continue reading
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Tagged adolescents, Dr Mark Porter, pacing, teenagers, Times
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Activity pacing (APT) self management approach for CFS
Research abstract: OBJECTIVE: The objective of this study was to evaluate the effectiveness of an activity pacing self-management (APSM) intervention in improving performance of daily life activities in women with chronic fatigue syndrome (CFS). METHOD: A total of 33 women … Continue reading
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Tagged activity pacing, adaptive pacing, APSM, pacing, relaxation, self management
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The nature of fatigue in CFS
Research abstract In this article, we report the findings of our study on the nature of fatigue in patients diagnosed with chronic fatigue syndrome. Using ethnoscience as a design, we conducted a series of unstructured interviews and card sorts to … Continue reading
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Tagged ethnosicence, exhaustion, fatigue, pacing, stress, tredness
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What do you think of ‘Pacing’?
Email us if you have any comments or questions about this poll. Find out more about pacing from our info sheet by Dr Goudsmit.
