Author Archives: wames
WAMES is growing to meet the challenges of 2021
WAMES is growing to meet the challenges of 2021 – AGM News Our AGM was held virtually on 27th March 2021. It was a time to take stock of the disruptions of 2020 and discuss how to tackle the … Continue reading
New study shows reduced ability to regulation of the cardiovascular system in patients with ME/CFS
Kavli Trust blog post on research into ME / CFS at Haukeland University: New study shows reduced ability to regulate the cardiovascular system in patients with ME / CFS, March 26, 2021 [Google translation of a Norwegian article] … Continue reading
Dissecting the nature of Post-Exertional Malaise
Dissecting the nature of post-exertional malaise, by Megan Hartle, Lucinda Bateman & Suzanne D Vernon in Fatigue: Biomedicine, Health & Behavior March 2021 [DOI: 10.1080/21641846.2021.1905415] Research Abstract: Background: Post-exertional malaise (PEM) is a defining characteristic of Myalgic Encephalomyelitis/ Chronic … Continue reading
Video: Living with ME/CFS: a paper stop-motion animation
An Existence Project: paper stop-motion animation about ME/CFS, 2 April 2021 An Existence Project is a short stop-motion animation about what it is like to live with mild or moderate Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS). It was … Continue reading
Food implications in central sensitization syndromes
Food implications in central sensitization syndromes, by Elena Aguilar-Aguilar, Helena Marcos-Pasero, Maria P Ikonomopoulou and Viviana Loria-Kohen in J. Clin. Med. 2020, 9(12), 4106 [doi.org/10.3390/jcm9124106] (This article belongs to the Special Issue New Frontiers in the Diagnosis, Prediction, Prevention, and Management … Continue reading
Video: Diagnosed with ME, attending long COVID clinic
Long Covid: ‘It’s like someone has piled sandbags on top of me’ Reece caught coronavirus during the first wave of the pandemic in March 2020, but like many twenty-somethings, he wasn’t hospitalised overnight. What he thought would be a mild … Continue reading
Deep phenotyping of ME/CFS in Japanese population
Deep phenotyping of myalgic encephalomyelitis/chronic fatigue syndrome in Japanese population, by Toshimori Kitami, Sanae Fukuda, Tamotsu Kato, Kouzi Yamaguti, Yasuhito Nakatomi, Emi Yamano, Yosky Kataoka, Kei Mizuno, Yuuri Tsuboi, Yasushi Kogo, Harukazu Suzuki, Masayoshi Itoh, Masaki Suimye Morioka, Hideya Kawaji, … Continue reading
NICE ME/CFS guideline publication delay – Aug 2021
NICE ME/CFS guideline – new publication date 29/03/2021 Level 1A, City Tower Piccadilly Plaza Manchester M1 4BT www.nice.org.uk Dear Stakeholder, Because of the large number of comments received during consultation on the ME/CFS guideline, and the additional work needed … Continue reading
Comparative survey of people with ME/CFS in Italy, Latvia, & the UK (EUROMENE)
Comparative survey of people with ME/CFS in Italy, Latvia, and the UK: a report on behalf of the Socioeconomics Working Group of the European ME/CFS Research Network (EUROMENE) by Elenka Brenna, Diana Araja and Derek F H Pheby in Medicina 2021, … Continue reading
WAMES statement on post-viral illnesses: COVID-19 & ME/CFS
WAMES statement on post-viral illnesses: COVID-19 and ME/CFS WAMES is calling on all political parties in Wales to support an inclusive approach to responding to COVID-19 and ME/CFS. Wales needs a strategy to recognise and treat illnesses triggered by … Continue reading
