Category Archives: News

Expectations of recovery in severe ME could impose unreasonable, unrealistic, even fatal demands

Stonebird blog post, Mar 2017: 25% Group and Stonebird Response to BACME (British Association for ME/CFS), article on care provision for severe ME Response to BACME Working Group on Severe CFS/ME Shared Clinical Practice Document Version 1 When you work … Continue reading

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The problem of bias in behavioural intervention studies: lessons from the PACE trial

Abstract: The problem of bias in behavioural intervention studies: Lessons from the PACE trial, by Carolyn Wilshire in Journal of Health Psychology [Preprint 23 March 2017] Geraghty’s recent editorial on the PACE trial for chronic fatigue syndrome has stimulated a lively … Continue reading

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The role of autonomic function in exercise-induced analgesia in ME/CFS

Research abstract: The Role of Autonomic Function in Exercise-induced Endogenous Analgesia: A Case-control Study in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Healthy People by Jo Nijs, Lieven Danneels, Luc Lambrecht, Greta Moorkens, Mira Meeus, Lorna Paul, Jessica Van Oosterwijck, Uros Marusic, and Inge De Wandele in Pain Physician 2017; … Continue reading

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How living with CFS/ME impacts upon people’s identity

Thesis abstract: A life lived differently: an exploration of how living with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) impacts upon people’s identity, by Rebecca E. Murray. University of Huddersfield Doctoral thesis 2017 [Published online March 13, 2017] Existing literature provides an insight into CFS/ME, but … Continue reading

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Genes, mitochondria, autoimmunity & CFS: Prof Alan Light’s research

Health rising blog post, by Cort Johnson, 23 Feb 2017: Genes, Mitochondria, Autoimmunity and Chronic Fatigue Syndrome: The Alan Light Talk Dr. Light has said that he wants to do for fatigue what researchers have done for pain; that is … Continue reading

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CBT for CFS/ME in children is different from CBT for depression

Discussion paper abstract: BACKGROUND:   Approximately one in three children and young people with chronic fatigue syndrome (CFS/ME) also have probable depression. Cognitive behaviour therapy (CBT) has a growing evidence base as an effective treatment approach for CFS/ME and for depression … Continue reading

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ME/CFS & Gulf War patients exhibit increased humoral responses to the enzyme dUTPase

Research abstract: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and Gulf War Illness (GWI) are debilitating diseases with overlapping symptomology and there are currently no validated tests for definitive diagnosis of either syndrome. While there is evidence supporting the premise that some … Continue reading

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Neurobiological & spinal fluid abnormalities in CFS are not influenced by psychiatric status

Research highlights: Patients have higher brain ventricular lactate, more abnormal spinal fluids, lower brain GSH, and reduced cerebral blood flow than controls Psychiatric comorbidity does not influence any of these potential biological markers of CFS 50% of the patients had … Continue reading

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Video lecture on clinical case definitions by Prof Jason

Youtube video published 17 March 2017: Leonard Jason’s Presentation on Case Definitions to European Network The issue of research and clinical case definitions were discussed in this 30 min March 2-017 talk, and then the European scientists asked questions for the remaining 30 … Continue reading

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How a study about CFS was doctored, adding to pain and stigma

The Conversation blog, by Steven Lubet, 23 March 2017: How a study about Chronic Fatigue Syndrome was doctored, adding to pain and stigma  The public relies on scientists to report their findings accurately and completely, but that does not always happen. … Continue reading

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