Category Archives: News
PACE trial claims of recovery are not justified by the data: a rejoinder to Sharpe, Chalder, Johnson, Goldsmith & White
Following a response from the PACE trial researchers to their re-analysis from the PACE trial researchers Wilshire et al have published a reply: Article abstract: BACKGROUND: Recently, we critically evaluated the claim from the PACE trial that cognitive behavioural therapy (CBT) and graded … Continue reading
The full independent re-analysis of the PACE Trial now available on open access
ME Association blog post, 22 March 2017: Thanks to the MEA, you can now read the whole independent re-analysis of the PACE Trial recovery paper, 22 March 2017 The independent re-analysis of the PACE Trial recovery paper emerged from behind the … Continue reading
Clinically proven mtDNA mutations are not common in CFS
Research abstract: Background: Chronic Fatigue Syndrome (CFS) is a prevalent debilitating condition tat affects approximately 250,000 people in the UK. There is growing interest in the role of mitochondrial function and mitochondrial DNA (mtDNA) variation in CFS. It is now … Continue reading
Bodily distress syndrome – the latest ‘term’ for CFS, FM, IBS etc.
Mail online article, by Roger Dobson, 20 March 2017: Why doctors can no longer dismiss symptoms as ‘all in the mind’: Experts reveal medically unexplained conditions can still have a physical cause In as many one fifth of cases, doctors … Continue reading
Activin B – a potential biomarker for CFS/ME?
Research abstract: Background: Investigations of activin family proteins as serum biomarkers for chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). CFS/ME is a disease with complex, wide-ranging symptoms, featuring persistent fatigue of 6 months or longer, particularly post exertion. No definitive biomarkers are … Continue reading
New York Times: Getting it wrong on CFS
New York Times article, by Julie Rehmeyer and David Tuller, 18 March 2017: Getting It wrong on Chronic Fatigue Syndrome What are some of the treatment regimens that sufferers of chronic fatigue syndrome should follow? Many major medical organizations cite … Continue reading
Woman’s Hour features a woman with ME’s experience of being cared for
BBC Radio 4: Woman’s Hour, 15 March 2017 Anastasia, a woman with ME in her early 30s, talks about what its’ like to be cared for by her mother and how hard it is to ask for what she needs. … Continue reading
A recumbent isometric yoga program for patients with severe CFS/ME
Research abstract: BACKGROUND: Our previous randomized controlled trial demonstrated that isometric yoga in a sitting position reduces fatigue in patients with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). However, some patients experience difficulties sitting or practicing isometric yoga in a sitting position … Continue reading
People with ME/CFS don’t trust their GP to give them info on their condition
Healthwatch Trafford press release 17 March 2017: More than half of people in the UK with ME/CFS said they wouldn’t trust their GP to give them information on their condition A revealing new report released today by Healthwatch Trafford shows … Continue reading
Study shows that clinicians often overestimate potential benefits & underestimate harms
This review looked at the work of clinicians in general, not specifically in relation to ME or CFS. Key Points: Question: Do clinicians have accurate expectations of the benefits and harms of treatments, tests, and screening tests? Findings: In this systematic review of … Continue reading
