Category Archives: News

Reasons given for not releasing PACE trial fitness data

PACE Trial: Reasons Queen Mary University of London gave for not releasing fitness data Tom Kindlon reports that retired mathematics teacher, Graham McPhee, requested the numerical values (for the groups, not individuals) used to create this graph of the fitness … Continue reading

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A robot-avatar: easier access to education & reduction in isolation?

Research abstract: This paper presents a qualitative study of deployment and use of a robot as a sick child’s avatar at school. Many children and youth suffer from a range of chronic illnesses that make them, often for long stretches … Continue reading

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Selfish mitochondria implicated in a variety of diseases

Vanderbilt University press release, 12 July 2016: Selfish mitochondria implicated in a variety of diseases Mitochondrial disorders are a chameleon-like set of diseases that take many different forms and vary widely from individual to individual. Mitochondria are special organelles found in … Continue reading

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Roles of the right dorsolateral prefrontal cortex during physical fatigue: a magnetoencephalographic study

Research abstract: Background: A regulation system in the central nervous system plays an important role in controlling physical performance during physical fatigue. Purpose: To clarify the neural mechanisms of this regulation system during physical fatigue using magnetoencephalography (MEG) and a … Continue reading

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Recovering from CFS & FM – The Lerner Way

Health rising blog post, by Cort Johnson, Aug 12, 2016: Recovering from Chronic Fatigue Syndrome and Fibromyalgia – The Lerner Way Recovery Recoveries or near recoveries from chronic fatigue syndrome (ME/CFS) and/or fibromyalgia don’t happen often but they do occur.  … Continue reading

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Experience what it’s like to suffer from CFS in video game ‘Robin’

Daily Mirror news report, 13 August 2016, by Ryan Brown: Experience what it’s like to suffer from chronic fatigue syndrome in this free video game ‘Robin’ Chronic fatigue syndrome (also known as ME) is a largely misunderstood condition that seriously affects sufferers’ day-to-day … Continue reading

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Post Lyme Disease & ME/CFS – are they the same?

Simmaron research blog post, by Cort Johnson, August 6, 2016: Post Lyme Disease and Chronic Fatigue Syndrome (ME/CFS) – Are They The Same? Post treatment Lyme disease syndrome (PTLSD) occurs when someone is treated for Lyme disease but never recovers. … Continue reading

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Roundup of Severe ME day activity

Tymes Trust Facebook: Remembering all the severely ill young people whom we know and have known. Phoenix rising, by Jody Smith: August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis MEAction: Take Action on Severe ME Day 25% … Continue reading

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The UK ME/CFS Biobank paves the way for bigger & better research

MEAction blog post, by Simon McGrath, 11 August 2016: The UK ME/CFS biobank paves the way for bigger and better research Simon McGrath reports that the UK ME/CFS Biobank is open for business, with blood samples available from 300 patients, … Continue reading

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ME/CFS in Colombian workers

Research abstract: Background: Chronic Fatigue Syndrome/Myalgic encephalomyelitis (CFS/ME) is a debilitating and complex disease characterised by intense fatigue and a variety of other symptoms, which are present for at least 6 months. Studies of CFS/ME in the working population are … Continue reading

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