Category Archives: News
Video: Long COVID, Post Viral Fatigue Syndrome & ME/CFS
A new video from Broken Battery describes the overlap in symptoms between Long COVID, Post-Viral Fatigue Syndrome and ME/CFS. Video link: https://www.youtube.com/watch?v=_LOvXta5ZaA Excerpts from video: Research that monitored people over time found that many people with Post Viral Fatigue … Continue reading
Deconditioning does not explain orthostatic intolerance in ME/CFS
Deconditioning does not explain orthostatic intolerance in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), by C (Linda) MC van Campen, Peter C Rowe & Frans C Visser in Journal of Translational Medicine vol 19, no. 193 (2021) [doi.org/10.1186/s12967-021-02819-0] Research abstract: Background: … Continue reading
COVID-19 symptoms over time: comparing long-haulers to ME/CFS
COVID-19 symptoms over time: comparing long-haulers to ME/CFS, by Leonard A Jason, Mohammed F Islam, Karl Conroy, Joseph Cotler, Chelsea Torres, Mady Johnson in Fatigue: Biomedicine, Health & Behavior 05 May 2021 [doi.org/10.1080/21641846.2021.1922140] Research Abstract: Introduction: Our objective was … Continue reading
Adolescent & young adult ME/CFS after confirmed or probable COVID-19
Adolescent and young adult ME/CFS after confirmed or probable COVID-19, by Lindsay S Petracek, Stacy J Suskauer, Rebecca F Vickers, Neel R Patel, Richard L Violand, Renee L Swope, Peter C Rowe in Frontiers in Medicine Vol 8, p 668944 , April … Continue reading
Elements of suffering in ME/CFS… in the severely & very severely affected
Elements of suffering in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: the experience of loss, grief, stigma, and trauma in the severely and very severely affected, by Patricia A Fennell, Nancy Dorr and Shane S George in Healthcare 2021, 9(5), 553; [doi.org/10.3390/healthcare9050553] 9 May … Continue reading
If you are living with ME – #YouAreNotAlone #MillionsMissing
ME Awareness day 12th May 2021 – Post-viral illness is not new!
May 12th is International ME Awareness day During 2020 and 2021 the world has been shocked, particularly in the West, by the indiscriminate damage that a virus can have. Chronic post-viral illness has been catapulted into the spotlight. But … Continue reading
Humility and acceptance: working within our limits with Long COVID & ME/CFS
Humility and acceptance: working within our limits with Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, by Simon Decary, Isabelle Gaboury, Sabrina Poirier, Christiane Garcia, Scott Simpson, Michelle Bull, Darren Brown, Frederique Daigle in Journal of Orthopaedic & Sports Physical Therapy Vol 51, … Continue reading
From DNA to drug development. Five success stories show the potential of DecodeME
DecodeME Study blog: From DNA to drug development. Five success stories show the potential of DecodeME How do you find treatments for a disease like ME/CFS, where nothing is known for sure about its causes? One way scientists can … Continue reading
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS
ME/CFS: whole genome sequencing uncovers a misclassified case of glycogen storage disease type 13 previously diagnosed as ME/CFS, by Donna Brown, Camille Birch, Jarred Younger, Elizabeth Worthey in Molecular Genetics and Metabolism Vol 132, Supp 1, April 2021, Pages S194-S195 … Continue reading
