Category Archives: News

Difficulties of living with an illness not considered a “Disease”: focusing on the illness behavior of ME/CFS patients

Difficulties of living with an illness not considered a “Disease”: Focusing on the illness behavior of myalgic encephalomyelitis/chronic fatigue syndrome patients, by Natsuko Nojima in Departmental Bulletin Paper, Osaka Human Sciences Vol.6   Paper abstract: This paper focuses on the … Continue reading

Posted in News | Tagged , | Comments Off on Difficulties of living with an illness not considered a “Disease”: focusing on the illness behavior of ME/CFS patients

Save4Children – helping children with ME in psychiatric wards

Save4Children – helping children with ME in psychiatric wards   The charity Save4Children has been created by the editors of the ME Global Chronicle and helps parents whose children have been forced into psychiatric wards by authorities, to try and … Continue reading

Posted in News | Tagged , , , , | Comments Off on Save4Children – helping children with ME in psychiatric wards

New ME/CFS training module for doctors & medical students

New CPD: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, May 13, 2020   A new training module for doctors and medical students has been developed by the CMRC Medical Education Group led by Dr Nina Muirhead, and leads to the award of 1 … Continue reading

Posted in News | Tagged , , , | Comments Off on New ME/CFS training module for doctors & medical students

My ME lockdown with the invisible “terrible triplets”

ME Awareness week: My ME lockdown with the invisible “terrible triplets”   I have been living in ME lockdown on my own, yet it doesn’t feel as though I am alone.  My lockdown experience started long before Covid-19 appeared on … Continue reading

Posted in News | Comments Off on My ME lockdown with the invisible “terrible triplets”

Poem: Words escape

ME Awareness week:       Words escape, a poem by Derryan Paul               ME affects the brain. Words escape. A sentence on a page is meaningless, and yet, you know there is a meaning somewhere … Continue reading

Posted in News | Tagged , , | Comments Off on Poem: Words escape

Gwyneth’s ME story part 3 – walking for ME

ME Awareness Week: Gwyneth’s ME story part 3 – walking for ME   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 3 of her story. Part 1 … Continue reading

Posted in News | Tagged , , | Comments Off on Gwyneth’s ME story part 3 – walking for ME

Gwyneth’s ME story part 2 – my route to recovery

ME Awareness week:       Gwyneth’s ME story part 2 – the route to recovery   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is part 2 of her story. … Continue reading

Posted in News | Tagged , , | 1 Comment

What’s the difference between Covid-19 and ME?

ME Awareness:         What’s the difference between Covid-19 and ME?   It is hard not to see many glaring differences between the attitudes to the illness I have struggled with for years and the latest public health threat. Covid-19 is … Continue reading

Posted in News | Tagged , | Comments Off on What’s the difference between Covid-19 and ME?

‘Staying at home’ with ME – Sarah’s story

ME Awareness week: ‘Staying at home’ with ME – Sarah’s story   Having had ME for 27 years I’m not expecting to get better. Every day requires time spent lying down, experiencing pain in my muscles and joints and sensitivity … Continue reading

Posted in News | Tagged , | Comments Off on ‘Staying at home’ with ME – Sarah’s story

Gwyneth’s ME story part 1 – trapped in my useless body

ME Awareness week: Gwyneth’s ME story part 1 – trapped in my useless body   Gwyneth Hopkins is one of a small percentage of people who has recovered from ME within 5 years. Here is her story, told in 3 … Continue reading

Posted in News | 2 Comments