Category Archives: News
IAFME sends an ‘agenda for change’ for ME to the WHO
IAFME contacts the WHO about ME The International Alliance for Myalgic Encephalomyelitis (IAFME) has produced a trans-national consensus document covering Myalgic Encephalomyelitis (M.E.). Recognition, research and respect: An agenda for change in M.E. has the support of over 60 clinicians, researchers, … Continue reading
ME/CFS in the era of the human microbiome
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the era of the human microbiome: persistent pathogens drive chronic symptoms by interfering with host metabolism, gene expression and immunity, by Amy D Proal and Trevor Marshall in Front. Pediatr. 4 Dec 2018 The illness ME/CFS has … Continue reading
The UK ME/CFS Biobank
The UK ME/CFS Biobank: A disease-specific biobank for advancing clinical research into myalgic encephalomyelitis/ chronic fatigue syndrome, by Eliana M. Lacerda, Kathleen Mudie, Caroline C. Kingdon, Jack D. Butterworth, Shennae O’Boyle, Luis Nacul in Frontiers in Neurology, 14 Nov 2018 [preprint Abstract: Myalgic encephalomyelitis/chronic … Continue reading
Brain abnormalities in ME/CFS
Brain abnormalities in myalgic encephalomyelitis/chronic fatigue syndrome: Evaluation by diffusional kurtosis imaging and neurite orientation dispersion and density imaging, by Kimura Y, Sato N, Ota M, Shigemoto Y, Morimoto E, Enokizono M, Matsuda H, Shin I, Amano K, Ono H, Sato W, Yamamura T in Journal … Continue reading
miRNA profiling of circulating EVs in ME/CFS
miRNA profiling of circulating EVs in Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) by Eloy Almenar-Pérez, Lubov Nathanson, Teresa Sánchez-Fito, Leonor Sarria, Germán Cerdá-Olmedo, Elisa Oltra in Journal of Extracellular Vesicles, suppl. Supplement 1; Abingdon Vol. 7, (2018): 139. Research abstract: Background: … Continue reading
Online pacing tutorial begins January 2019
Online Pacing Tutorial US based ME/CFS & Fibromyalgia Self-help program hold quarterly online tutorials to teach the basics of pacing. Open to to all English language speakers 7 week course Offered quarterly and conducted via email list server, the class is … Continue reading
Dr Anne McIntyre RIP
A long time advocate and sufferer of ME, Dr Anne McIntyre, died on Saturday 24th November 2018. She had been living with rheumatoid arthritis for many years and developed pulmonary fibrosis as a complication of that. Her book M.E. Chronic … Continue reading
Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS
Low sensitivity of abbreviated tilt table testing for diagnosing postural tachycardia syndrome in adults with ME/CFS, by C (Linda) M van Campen, Peter C Rowe and Frans C Visser in Front. Pediatr., 16 November 2018 Introduction: Orthostatic intolerance is common among … Continue reading
Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms
Blood volume status in CFS/ME correlates with the presence or absence of orthostatic symptoms, by C (Linda) Van Campen, Peter C Rowe and Frans C Visser in Front. Pediatr. Oct 2018 Introduction: Conflicting data have been published on the reduction of circulating blood … Continue reading
A poem about Me and M.E – One stupid dot
‘What’s up TV’ presents a 2 minute poem by Stacy Hart: Me and M.E, how ‘One Stupid Dot’ makes all the difference Stacy’s blog: Mama Chill…Stacy Hart…Runnin On Empty
