Tag Archives: FITNET
FITNET’s internet-based CBT may impede natural recovery in adolescents with ME/CFS
Review abstract: FITNET’s Internet-Based Cognitive Behavioural Therapy is ineffective and may impede natural recovery in adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. A Review, by Simin Ghatineh and Mark Vink in Behav Sci (Basel). 2017 Aug 11;7(3). pii: E52 The Dutch Fatigue … Continue reading
David Tuller comments on the NICE guidelines consultation
Virology blog post by Dr David Tuller, 17 July 2017: Trial by error: the NICE guidelines and more on the CDC Excerpt: … What is obvious, but what NICE appears to overlook, is that the CBT/GET literature is plagued by … Continue reading
WAMES challenges NICE’s reason not to update the CFS/ME guidelines
WAMES sent our response to the NICE consultation on Monday 24th July 2017. NICE asked: Do you agree with the proposal not to update the guideline? WAMES replied: We believe the NICE Guidance CG53 on CFS/ME omits guidelines on key … Continue reading
CFS, Bristol University, & controversial science
The Bristol Cable blog post, by Lorna Stephenson, 7 July 2017: Chronic fatigue syndrome, Bristol University, and controversial science, Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid … Continue reading
Children with ME need relevant science, not pressure to do more, more, more
Bristol cable article, by Jenny Horner, 24 January 2017: Children with ME need relevant science, not pressure to do more, more, more” An advocate and campaigner living with ME explains why she opposes Bristol University’s trials on children with the … Continue reading
Correspondence continues between Countess of Mar & BBC
The Countess of Mar was unhappy about the BBC’s reply on 21 November 2016 to her official complaint about their reporting of the proposed UK FITNET trial. On 8 December the Countess wrote to the BBC director-general and this has been published by … Continue reading
BBC reply to Countess of Mar re FITNET reporting
The BBC has replied to the Countess of Mar’s complaint about their reporting of the FITNET trial. 21st November 2016 The Countess of Mar House of Lords London SW1A 0PW Via email: marm@parliament.uk Dear Lady Mar Thank you for getting … Continue reading
Tuller says FITNET fraught with misrepresentations & methodological problems
Virology blog post, by David Tuller, 21 November 2016: Trial By Error, Continued: The New FITNET Trial for Kids The article challenges: the failure of PACE researchers to acknowledge failings of PACE the unproven use of CBT to reverse false … Continue reading
Dutch people with ME invite you to sign their petition – ME is not MUPS
Dutch ME Association ME/cvs Vereniging invites people in Wales to join them in signing a petition to the Dutch Health Council. They are concerned about attitudes to ME following the Dutch FITNET trial (which is now influencing research in the … Continue reading
FITNET & PACE in the media continue to incite controversy
BBC Radio Scotland: The Kaye Adams show on 7 November 2016 included an hour long discussion of ME and the PACE trial. Available to listen to until 6 December. Speakers were an American writer Julie Rehmeyer, and the ME Association’s medical adviser Dr … Continue reading