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Meeting the educational needs of young ME/CFS patients: role of the treating physician
Meeting the educational needs of young, ME/CFS patients: role of the treating physician, by Faith R. Newton in Front. Pediatr., 02 April 2019 https://doi.org/10.3389/fped.2019.00104 Article introduction: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a disabling, chronic disease characterized by the … Continue reading
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Tagged Dr Faith Newton, education, GPs, paediatric ME, school absence, young people
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Long term follow up of young people with CFS attending a pediatric outpatient service.
Long term follow up of young people with Chronic Fatigue Syndrome attending a pediatric outpatient service, by Katherine S. Rowe in Front. Pediatr. 21 February 2019 Research abstract: Objective: To describe the functional and educational long-term outcomes, predictive factors … Continue reading
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Tagged adolescents, children, functional ability, long-term follow-up, paediatric ME, teenagers
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The importance of accurate diagnosis of ME/CFS in children & adolescents: a commentary
The importance of accurate diagnosis of ME/CFS in children and adolescents: a commentary, by Keith J Geraghty and Charles Adeniji in Frontiers in Pediatrics [Preprint December 31, 2018] Article abstract: Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes … Continue reading
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Tagged adolescents, Charles Adeniji, children, diagnosis, Dr Keith Geraghty, epidemiology, paediatric ME, teenagers
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Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME
Adolescent’s descriptions of fatigue, fluctuation and payback in chronic fatigue syndrome/myalgic encephalopathy (CFS/ME): Interviews with adolescents and parents, by Roxanne M Parslow, Nina Anderson, Danielle Byrne, Alison Shaw, Kirstie L Haywood, Esther Crawley in BMJ Paediatrics Open Vol 2, #1, December 4, 2018 What this study hopes … Continue reading
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Tagged adolescents, Alison Shaw, children, Danielle Byrne, Dr Esther Crawley, Kirstie Haywood, Nina Anderson, paediatric ME, payback, relapse, Roxanne Morin Parslow, teenagers
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The development of the DePaul symptom questionnaire: original, expanded, brief & pediatric versions
The development of the DePaul symptom questionnaire: Original, expanded, brief and pediatric versions, by Leonard A Jason, Madison Sunnquist in Frontiers in Pediatrics, 6 Nov 2018 One of the key requirements of a reliable case definition is the use of standardized procedures for assessing … Continue reading
Understanding ME & CFS symptoms in children – take part in research project!
Symptomatology of pediatric ME & CFS – research project The Center for Community Research at DePaul University in the USA, led by Prof Leonard Jason says: There is currently little research on children with myalgic encephalomyelitis (ME) and chronic fatigue … Continue reading
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Tagged children, Madison L Sunnquist, paediatric ME, Prof Leonard Jason, questionnaire, research, young people
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School functioning in adolescents with CFS [Australia]
School functioning in adolescents with Chronic Fatigue Syndrome, by Sarah Jenette Knight, Jennifer Politis, Christine Garnham, Adam Scheinberg and Michelle Anne Tollit in Front. Pediatr., 16 October 2018 Background: It is well known that adolescents with chronic fatigue syndrome (CFS) experience greater … Continue reading
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Tagged academic performance, Adam Scheinberg, adolescents, Christine Garnham, Dr Jennifer Politis, Michelle Anne Tollit, paediatric ME, Sarah Jenette Knight, school absence, school functioning, teenagers
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Videos: Prof Peter Rowe & Dr Nigel Speight, discuss paediatric ME/CFS
Paediatric ME/CFS (from Voices from shadows website) Two world renown ME/CFS paediatricians, Prof Peter Rowe and Dr Nigel Speight, discuss paediatric ME/CFS diagnosis and management in two short videos for medical professionals, following publication of the comprehensive manual Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome … Continue reading
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Tagged children, Dr Nigel Speight, Dr Peter Rowe, paediatric ME
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Pediatric CFS: Dr Crawley’s perspective
Article abstract: Pediatric chronic fatigue syndrome: current perspectives, by Esther Crawley in Dove Press Vol 9, #4, pp 27—33 [Published March 29, 2018] Pediatric chronic fatigue syndrome is an important illness as it is relatively common and also very disabling with … Continue reading
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Tagged adolescents, children, Dr Esther Crawley, paediatric ME
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Childhood sleep & adolescent CFS/ME
Research abstract: Childhood sleep and adolescent chronic fatigue syndrome (CFS/ME): Evidence of associations in a UK birth cohort, by Simon M Collin, Tom Norris, Paul Gringras, Peter S Blair, Kate Tilling, Esther Crawley in Sleep Medicine [Preprint January 31, 2018] Highlights: Children … Continue reading
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Tagged adolescents, ALSPAC, Avon Longitudinal Study of Parents and Children, children, chronic fatigue, Dr Esther Crawley, Kate Tilling, paediatric ME, Paul Gringras, Peter S Blair, Simon M Collin, sleep disturbance, Tom Norris
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