Tag Archives: paediatric ME
OMF resources for parents of children with ME/CFS
The Open Medicine Foundation Pediatric ME/CFS web page contains information about ME for parents, doctors and educators from a US perspective, but much is helpful in the UK: The presentation and course of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is often … Continue reading
Practical management of CFS or ME in childhood
Article abstract: Practical management of chronic fatigue syndrome or myalgic encephalomyelitis in childhood, by A Brigden, M Loades M, A Abbott, J Bond-Kendall, E Crawley in Archives of Disease in Childhood [Preprint June 28 2017] Full article behind paywall Paediatric chronic fatigue syndrome … Continue reading
Carers of children with ME ‘accused of fabrication’
BBC News England, 27 June 2017: Carers of children with ME ‘accused of fabrication’ Chronic Fatigue Syndrome, or ME, affects about 25,000 children in the UK A “significant number” of those caring for children with ME have been accused of … Continue reading
ME/CFS diagnosis & management in young people: a primer
Review article: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Diagnosis and Management in Young People: a Primer, by Peter C. Rowe, Rosemary A. Underhill, Kenneth J. Friedman, Alan Gurwitt, Marvin S. Medow, Malcolm S. Schwartz, Nigel Speight, Julian M. Stewart, Rosamund Vallings and Katherine S. … Continue reading
Dr Byron Hyde and ‘the terrible tale of Amy Brown’
Amy Brown is the pseudonym of an English child whose story is recounted by Dr Byron Hyde, a Canadian doctor who has been actively researching and treating people with ME for decades. Dr Hyde describes the years 9 year old ‘Amy’ spent … Continue reading
CBT for CFS/ME in children is different from CBT for depression
Discussion paper abstract: BACKGROUND: Approximately one in three children and young people with chronic fatigue syndrome (CFS/ME) also have probable depression. Cognitive behaviour therapy (CBT) has a growing evidence base as an effective treatment approach for CFS/ME and for depression … Continue reading
A clinical approach to ME/CFS in adolescents & young adults – video talk by Dr Peter Rowe
Solve ME/CFS Initiative webinar video, 17 March 2017 A Clinical Approach to ME/CFS in Adolescent and Young Adults: A Practical Primer, by Peter Rowe MD, director of the Chronic Fatigue Clinic and professor of pediatrics at Johns Hopkins Children’s Center … Continue reading
Clinical approach to ME/CFS in adolescents – webinar by Peter Rowe, 16 March 2017
Solve ME/CFS Initiative webinar, 16 March 2017: A clinical approach to ME/CFS in adolescent and young adults: a practical primer Time: 17:00-18:00 GMT Speaker: Dr Peter Rowe, director of the Chronic Fatigue Clinic and professor of paediatrics at Johns Hopkins Children’s Center in Baltimore, Maryland, USA. Register
Important factors to consider when treating children with CFS/ME
Research abstract: Background: Paediatric Chronic Fatigue Syndrome (CFS)/Myalgic Encephalomyelitis (ME) is relatively common and disabling. Improving treatment requires the development of Patient Reported Outcome Measures (PROMs) that enable clinicians and researchers to collect patient-centred evidence on outcomes. Health professionals are well placed to provide … Continue reading
Children’s experiences of CFS/ME
Review abstract: Objective: To synthesis the qualitative studies of children’s experiences of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME). Design: Systematic review and meta-ethnography. Background: CFS/ME is an important disabling illness, with uncertain cause and prognosis. As a result, children with CFS/ME can find … Continue reading
